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Just a bad day*

So yesterday was a really bad day for me. Two of my major symptoms besides the pain are loss of appetite and severe fatigue. I get to work yesterday and the pain in my back and right leg are unbearable and on top of that I looked as if i was going to pass out at any minute from lack of sleep. Long story short… Read More

Help From Someone *

Hello Everyone! This is my first post. I am reaching out on here because I am hoping to find people that understand MS and what the heck is going on. I was diagnosed in September of 2017. In the begining I was very strong and willing to tackle all that MS had to offer.  As time progressed my medicine became… Read More


Yet again they seem to be intent on thinking I'm on drugs and spying on my every move and criticizing my every move I was having dinner with a friend and I could here them talking the whole way through i have them talking trash day in and day out and when I try and talk about the things stressing me out then I… Read More


Hi all I am doing so much better as to my mood anyways I'll get to it ivI' been staying in a little 20 foot travel trailer with my four furbabys and I was blessed with a 36 ft motorhome. now I actually did a lot of cleaning with help from my family and we moved my stuff into it today.  I was so excited I… Read More

Staying active through biking.*

Hello All. DaveDguy here. No, I didn’t create the name; AOL created it for me eons ago when I started using email. A little background. I was diagnosed with RRMS in April 2013 at the age of 54. Was kind of surprise, to say the least. My mom had MS but she got it in her 30s so I figured I dodged that genetic… Read More

More problems at home*

Well since my last post i mentioned about my nephew and today he brought up the house again and I told him I didn't think it's going to work because I'M having my wife come up to take care of me and he got mad and punched my counter or kitchen sink in my travel trailer I feel threatened by his actions and the… Read More

Problems with family*

Hi all I'm in southern California and i have been dealing with my health for a long time but my family all they see is a paycheck or hitting me up for my meds and I love them but I don't know what do anymore I'm at the end of my rope I've tried suicide even because of all the stress I put 7 75 microgram… Read More


   This current attack is not responding to steroids or neuropthy meds. I've been using a walker but can't go far or carry anything. I find out about a wheel chair, hopefully, next week. If I'm only approved for a heavy one it won't help. I don't know how to do things with a wheelchair but I can go further and… Read More

Missing life*

I would like to talk to adults (50s) that have suffered big (life) losses due to MS.  Quitting my job has been especially painful.  Walking is but a distant memory...  I'm beyond annoyed.  I am not trying to be rude, but I don't want to hear it's God's plan, everything happens for a reason, etc.  Let's just be… Read More

Isolated headaches....

So, I'm having these headaches, but not really the kind of headache I'm used to.  It isn't the typical throbbing sinus pressure headache, or even stress related type. I get these sharp pains that hit hard and fast, but really isolated in size.  Maybe the size of a quarter or a bit larger.  And hits hard enough… Read More

Dear IT Persons,*

Please restore the streaming of individuals posts in the Profile function. It makes it easier and less time consuming to find someone's post instead of going through every post for days. Thank you. Read More

Let's All Get Depressed. *

Since depression is the most difficult feeling to grapple with it is worth examining in depth. Yes, it is part of the grieving proccess and most of us move on, we all go through a lot of losses with ms, a lot of little things that are no longer available to us, and of course the big things and we swallow the… Read More

Handling the Pain*

I've had MS for 7 years now, and I've always had at least a tentative grasp on it; what my limits are, what can trigger some symptoms, and how to best handle them. My most common symptom is leg pain and spasms. I do not know if it is due to the MS directly or a side effect of the medication I am on (Gilenya). I… Read More

pain & depression worse*

I received my 1st 2 infusions of Ocrevus at the end of December. Now...1 month later, it feels like my pain is worse along with my depression. I spent last night thinking of how I could end all this pain. I won't do anything, but it's just too much for me to handle. My doc suggested Lyrica for the pain but at… Read More

relocation info*

I am looking for an MS contact that lives in Colorado, in one of the mountain cities.  I use to live in Steamboat Springs and I am considering moving back.  But I'd like to know how the weather affects a person's MS symptoms during a cold winter. Glenda Read More

University study tips*

Hello and much happiness to you all! I have just joined today hoping to make new friends. I am a mature student living in the UK, studying Natural Sciences. I am yet to find a study technique that can help me retain more information, giving the cognitive issues from this damn illness. Any help or even a nice… Read More

Hair loss and MS??or the drugs??

Hi all I was just diagnosed in July and am on copaxone.  Has anyone experienced hair loss from copaxone or just from MS in general?  It looked like I had a hand mitt of hair in the shower, which is way beyond my normal hair shedding!! Thanks in advance Amy Read More