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for: dcyrdomiko1 *

Take a deep breath, hold it for three seconds, exhale slowly, take another deep breath hold it for three seconds exhale slowly. Now tense all the muscles in your body, hold for three seconds then release.  People live with ms without any medication, they pay attention to what is going on in their bodies and… Read More

As so many have asked me..........*

 I am asked this by so many I figure why don't I just make a list and check it twise!!! So here it goes.    Fatigue--- Ah yes but only when I really want to do something.   Numbness--- yep mostly in my right leg and foot and it is most always there.    Walking(gait)--- Always my right leg &foot went… Read More

Home help*

My sons and husband have been my daily assistants for awhile but our sons (23-16) are moving on with their lives. My husband works insane hours at a paper mill. I need help cooking and cleaning. I am in a motor chair 24/7 and under weight. On paper my husband makes too much for any aid but in reality with one… Read More


Hi everyone, Life with MS is very hard. Everyday is different. Not only do I have MS I have Trigeminal Neuralgia. I was inspired by so many stories and just my daily life that I have been working on a book. I do visit the site to get help me understand that I'm not alone. Due to me sinking in a depression and… Read More

Having trouble with decision making*

I get wear I can't make decisions at times even if it is necessary it doesn't last long just at times a couple of days but I'm struggling with it. I have been having these problems for a few years now but it's been happening more often than not. Anyone else get like this. and if so do you have any advice. Read More

Putting on a Fundraiser *

Has anyone ever put on a fundraiser that could give me some pointers? I'm looking to put on a fundraiser in honor of my mom and not sure where to start. What's good fundraising goal? Do I need waivers, tax deduction form, registration forms, etc. What are some good ideas to get the work out?  Any input would… Read More


So around the middle of july I had a call from my doctors office about some bloodwork I had done a little ways ago. While during the phone call the nurse practitioner said to me that I'm positive for the jcv. Then she began to instruct me that they have already looking into running some tests and will schedule… Read More

I'm having one of those days*

I woke up a bit slower today and was doing ok for a while and I started getting more spastic after a bit and then it just started getting worse I think by trying to get the muscles not to spazz I made it worse. Well I had a friend come over to visit and I had to cut it short because of the spasms. I hated that… Read More

MS Entropy*

Found this passage in the Bible.  Isnt it so apropros to our lot in life :-)? Remember now your Creator in the days of your youth, before the difficult days come, and the years draw near when you say, “I have no pleasure in them.”Ecclesiastes 12:1 "Our body is in the process of wearing out, of breaking down… Read More

MS and living abroad?

Hi connectors. Wondering if anyone's traveled or moved abroad, and how they managed symptoms and received medication. I want to teach English in Indonesia for a year, but don't want to risk my MS health! Thanks, Jess Read More


Hello, I am new to this blog thing, but I'm giving it a try. I was diagnosed at 45 years of age back in 2015. I divorced in 2008 and I havent dated since then and now with the disgnosis, I really don't consider it. I am at a point where I don't think I can find someone who'll love me because of my condition. Am… Read More

Not doing to well lately *

I'm stuck in this never ending rut it feels like. I'm finding myself stuck in bed most days. And I really don't know what to do anymore about it. I try to get up but it never seems like i get to. I don't know if it is depression or the weather that's got me feeling like this or both. Then my older sister was… Read More

Coping with emotions.*

How do cope with too much emotions? Do they cause flares? I am scared to tell my daughter about my diagnosis because she would cry, be sad, anxious and in turn I would be anxious/sad for her...  I get emotional on things... is that bad for MS? How about anxiety? Most of my flares seem to be related… Read More


Ok I'm just having one of those days where I want to be able to be a normal person. Wait I always want to be a normal person. But I mean a more normal life wear I don't have family messing with me. And wear I don't feel like I have to be dependent on others I have been trying to be able to do more but my body… Read More

Coping with anger issues*

Looking for someone who has spouse who is angry and has outbursts of anger.  Really looking for someone who has navigated these issues successfully to assist in providing skills that may assist in dealing with this.  My wife is angry about the past and fearful/angry about what she thinks the future will be.  We… Read More