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Daily Life

University study tips*

Hello and much happiness to you all! I have just joined today hoping to make new friends. I am a mature student living in the UK, studying Natural Sciences. I am yet to find a study technique that can help me retain more information, giving the cognitive issues from this damn illness. Any help or even a nice… Read More

Hair loss and MS??or the drugs??

Hi all I was just diagnosed in July and am on copaxone.  Has anyone experienced hair loss from copaxone or just from MS in general?  It looked like I had a hand mitt of hair in the shower, which is way beyond my normal hair shedding!! Thanks in advance Amy Read More

Psychic Pain *

Psychic pain is our imagination run amok, it is the stuff we make up to scare ourselves into feeling something because we have suppressed our emotions so deeply into disbelief that we feel nothing. We make up the most frightening stories we even put Stephen King to shame. We create terror so we can feel… Read More

What are you feeling today?*

Can you describe EXACTLY what you are feeling today and what your feelings are focused around, can you admit you have feelings, can you parallel todays feeling to some time in your past when you had a similar experience. Does it mean anything to you today?  Read More

Daily life*

Hello, I am looking for people who have lived with MS for years and could answer simple questions I have about daily life, parenting, activities, healthy food habits (I don't have any) along with help with some experience about how to self treat some systems I have numbness and tingling sometimes hard to walk… Read More

Mortality *

I was diagnosed In December 2017. I am just now starting to accept this thing. Yet one thing I can not shake, is the realization of my mortality. I know everyone goes through, and i know this is not a death sentence but it brought my understanding of death to the forefront. When I go out in to the world it all… Read More

Hi *

Right so I’m out of hospital properly had beer for the first time last night and stayed at a friends and now tonight I’m back in my place and I’m just sitting here I actually don’t think I’ve ever felt so lonely in my life before.amm I bought a playstation thinking that would solve something but nope that’s… Read More

Ah the little thing’s,*

  Ah the little thing’s I have alway’s for granite in my everyday life. Little thing’s that I would just do without even thinking about it, as in fixing something to eat and then really abel to eat it instead of warning it? Or maybe it’s trying to fit in with crowd and try and not look like an odor fool and not… Read More

How do you cope with a foggy head?

Wow, this foggy head of mine seems to be unrelenting.  Just wondering if others here take any meds that have helped with this issue or have suggestions other than rest?  My biggest issue seems to be a wall that goes up in my brain that keeps me from solving problems, adding numbers, remembering details from… Read More

Baclofen Pump

I am trying to get some information on the Baclofen Pump. Been taking oral Baclofen for about 8 yrs but maxed out with little helped with lower extremity spasticity. My legs feel like they have bungie cords attached to them. My neuro has suggested the Pump  Does anyone have the Pump and what has been your… Read More

Tired of pain and ms*

Im just so tired of always feeling pain and not being able to do what i use to. I miss running in the park or being able to walk for miles and work hard. Sometimes i have bad thoughts all because everyday i deal with pain. For the last 2years ive been on high dose of prednizone for my breathing and they weaned… Read More

How does MS affect you?*

Hey everyone -  my spouse has SPMS and is struggling a bit at present, but I'm actually seeking your input for something different.  I'm the fundraising coordinator for an MS150 bike team, and I want to promote rider fundraising by making things more personal.  I'd really appreciate your thoughts on how MS… Read More


...the fact or proccess of losing something or someone, is how it is defined, it explains nothing. Webster's thesaurus says: the action of having something go out of one's possession or control. Lost, no longer possessed, irrecoverable bygone dead defunct departed gone vanished absent missing doomed. And… Read More

Being Stuck*

How do you let go of the past. How do you begin to weave a new life for yourself. How do you come to terms with the new you. Where do you begin the proccess of becoming a person living in the present, with all the new limits ms has thrust upon you. Can you just stay in the present and appreciate what you have… Read More

Traveling with Disabilities*

Does anyone know of a site or resource for travelers with disabilities?  My best friend's husband also has MS.  He uses a cane most of the time and has recently had a horrible experience at a resort while travelling.  I think it would be beneficial to have some sort of resource for people like us to help us… Read More

Subtle changes!!??*

Sundays for me are the "end" of the week. I have the "luxury problem" of "nothing" going on and do lots of self reflection. In the past week or so i realize i've made some rather "big" small changes to self, by self. Today, i'm in my second week off the cigarettes .... not going as "bad" as i thought it might… Read More