I have 3 girls 17,10.12 and a husband, I don't say anything about all of the hundrends of thing I feel constantaly, I don't think they want to hear it , perhaps they don't know what to say back, or I'm certain they think most of it is not true or a excuse to be lazy, I just wish I had a better support system. Not trying to be a downer, thats just how its working out for me, its ok, I am happy for MS connection, I don't feel alone and feel like I have a million friends that knows just what its all about and just what is up, with my silent symptons!
I can deff relate to this. ;) I hv 3 kids, 18,18,21 .. and it would appear tht my BOYS are much more responsive/receptive to how I feel, than perhaps my Daughter/ my siblings are. First try to undrstnd, Its so hard for a Mom(myslf) to show her(my) ..imperfections.. when for most of her(my) adult life, was completely independent, and thn almost suddenly, Was Not.. Being divorced and working a full and part time job, and raising them on my own ( and all tht it entails), it would have seemed to them, and others, that there wasnt much Mom Couldnt do.. except pee standing up.lol (well, tht parts Not true, i just cnt really aim or hit my target..lmao.). And, in my childrens eyes, I was the anchor, the go to, the healer.. of Any situation. Even divorce. I cannot begin to tell you what an exhausting effort it has been this last decade and more, just not knwing wht was wrng w/me. And again, the kids had no real idea tht I had any ailments at all. I kept all of my weaknesses/pain to myself, so as NOT to scare my children,ultimately.
Until 2yrs ago.. whn I had announced my dx. And, since MS is an invisible disease, i dnt think my immediate family undrstnds exactly whts going on. (w/exception to my boys. thy WANT to undrstnd this.) All other family members dnt believe me, or choose not to see it, because thy dont SEE the problem. Ive tried talking and even given them copies of my dx, along w/papers frm recent visits to the ER. These papers gave the simplest explanation of the disease "MS", and still it seems not to be accepted, or deffinately undrstood, by so many family members. Im not so sure how to make it any clearer to those whom can't undrstnd this, whether by choice or by ignorance.
I see my problem now being the fact tht if I dwell on it, i become frustrated, which could lead to anger, which is an emotion tht can be found to be spontaneiously out of control, at times(w/MS), and this.. can only make me sicker. So... it would seem i just have to let it roll, and hope tht thy will seek the knowledge to undrstnd wht its like to live with MS. its not pity i ask for... just an undrstnding. And if You know a way to get it accross to others easily enough, i would appreciate any input you may be willing to give. Thank You. Stay strong. W/Gods blessing. <3