Having ms is a chore
Sometimes knowing that others have ms makes others feel better
Sometimes knowing that others have ms makes others feel worse
When I read that others feel better when they hear that someone is suffering or coping with the same symptoms a confusion arises
Are they feeling better because someone else is suffering
Are they feeling better because it is a symptom of ms and not something else
Are they feeling better because someone else knows what they are going through
Is it all of the above
Is it ms or is is something else
Sounds like this, sounds like that, sounds like everything else
Treat it with this , treat it with that
then treat the reaction to the treatment
What works, what does not work
what to do, what not to do
maybe the same
for me and for you
and then again
If i were the only one
how would I feel
to be unique, to be alone
I will never know
But I do remember way back when
it was all new and strange
the confusion, the fear, the difficulty
and what made it better
was the ability to share
with those who knew
what I was going through
and somewhere, somehow
they made it better, no not better
but better to cope with
they understood, they shared, they care
I was not the only one
and I did not have to do it alone
I did not have to be afraid alone
i would not have to live alone
And the support for the struggle
was big and genuine
and the information abundant
I could read forever
what it was like
because I was not
The Only One.
So for all who have been there
And for all who have done all the work
And for all who are there
We are not
The Only One
And for that
A job well done
because it is no fun
The Only One.
Maria - I have been part of this website for only a short period of time, but I have read many of your posts - you are just unbelievable articulate and have a fantastic command of the english language - I can only assume that at some point in your life you were a writer - or you should have been. You have a true God given gift for words!
Only in my dreams.
I am pleased that you enjoy my amusements.
I do not travel and have to find ways to amuse myself.
Only the past two years has the brain been functioning.
Maybe it is because everything else is waning.
Something in the head connected.
Maybe it was all the practice with rhyming,
roses are red....
And Gracie Allen.
Do you know who Gracie Allen was>
married to George Burns.
She made me laugh so much because she would connect words in a conversation and direct it a hundred eighty degrees from the gist of the conversation.
She is my hero.
I am learning how to accept compliments.
I am so happy you like the way I say things.
I was embarassed when hlessey paid me a compliiment, and reacted tersely.
It was an alien experience.
I have spent years trying to find the words to explain to the doctors exactly what I am feeling. In my mind, all alone, I look for words, like hunting for buried treasure. Because of the need to conserve finances I decided to spend my time trying to describe things. Like looking out the window and describing what I see. So I can create adventures for myself. We have no neighbors to speak of, and very few distractions.
And I want to be a story teller.
So all I need is a little encouragement.
And I am trying to make this site a little less dramatic. To relieve some of the pressure on all of us. And to make something pretty. Pretty things make me happy, and I hope it makes others happy too. "The best revenge is to live well"
Beautiful Maria. You really captured how scary it is when a huge change like ms comes along, all of the rush of emotions, and the resolve that people have to find in times of much chaos, most of all how lonely it can feel when dealing with a change such as ms. I really like how you explained this in poetic form. You are not alone, many are with you.