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  • fnp1withms

    Does anyone experience depression and/or mood swings?? I have been officially diagnosed for 10 months and have been on 2 different treatments including Tecfidera and now Copaxone. I have also had IV Solu-Medrol 4 times. I have been experiencing alot of depression which has worsened over the last 6 weeks or so and now Mood Swings.

    Has anyone else experienced this and if so, any ideas?

    Thanks.

  • maria1

    You are not even a year old (with ms) and your body has  been subjected to more than one beating(drugs plus the effects of ms). So why should you not have an emotional reaction at least a hundred times a day. Your mind and spirit are trying to adapt to something that changes every moment, trying to cope but not knowing what is going on, ever. And the medication is odd too, and the experience of going to the hospital all the time for infusions. Not what you expected of life! and you don't have time to think or stand still when something else hits. So it sounds like you are right where you should be. Even if you dont like it. Observe yourself, see how you are reacting, do not try to judge, you have never been here before. Your mind is putting on a show for you, even if you dont like it. 

    If you are thinking it is lasting toooooo long, ask the md for a script for a antidepressant, something mild for it also will be something else to adapt to. 

    Keep sharing with us, it will aid in the adjustment, read other posts here and be kind to yourself, you are your best friend.

  • toya01
    @Maria u are so right I'm just now getting comfortable to even get on here and reply. Ithe will be officially a year for me next week and I have experienced so much within this lil time. This has been 1 emotional ride and I feel so lost I have been unemployed now since a few months after being diagnosed. I really just don't know how to cope aND trying to find out how.
  • fnp1withms

    Maria1,

    I have been in the healthcare field for the majority of my life and it is very difficult being on the other side of treatment. So I may be "new to MS, almost a year diagnosed", but it is very hard to deal with a diagnosis that may take my career and my independence. My career and independence are both extremely important to me as i'm sure they are with everyont.

    So, the reason I was looking for advice and support was due to the mood swings and depression and coping techniques used by others. Not to be told to suck it up and deal with it.

    Thanks

  • MS_Navigator_Steph

    Hi fnp1withms,

    Emotional changes are very common in MS—as a reaction to the stresses of living with a chronic, unpredictable illness and because of neurologic and immune changes caused by the disease.  For more information on this topic, you may want to view the Emotional Changes section of our website.  This section discusses topics such as cognitive function, the emotional aspects of MS, taming stress and dealing with the “invisible” symptoms of MS.

    Emotional Changes : National MS Society

    For information specific to mental health and MS, view our brochures:

    Brochure : MS and Your Emotions

    Brochure : MS and the Mind

    Brochure : Depression and Multiple Sclerosis

    If you are interested in self-help groups in your area or referrals to counselors, please give us a call at 1.800.344.4867.

    Best,

    MS Navigator, Stephanie

  • Mrsnurse

    Of course, your moods are all over the place!   You have recently been diagnosed with a life altering disease!  No wonder!   Each person's MS is different!  You have received some wonderful advice.  Please do your best to stay optimistic and positive.  Maybe that advice sounds ridiculous to you, but it really does help.  Do not ever be afraid or ashamed of your depression-- you are human.  Please talk to your doctor about your feelings.  Depression is very common with MS.  I have been on an antidepressant since I was first diagnosed with MS.  Once I did try to get off of it, but quickly saw that I just need it!  I have every reason in the world to be depressed--I have MS.  Believe it or not, things will get better.  You can still lead a happy productive life!  Hang in there!  We are here for you! mrs.nurse

  • Lisa_V

    First, take a deep breath and be OK this one second. Give yourself time to GRIEVE! You are dealing with the anticipated loss of future plans, your feeling of invincibility, your hope that you will never have to ask for help... Your feelings will run around up and down until you can accept where you are now. If it'll help, go out on the back porch and shout "WHY ME?!?" to the heavens.

    You need to go through the 4 Stages first described by Elizabeth Kubler-Ross. This is all so new to you. You just might now be realizing there is no "fix" for MS. I found myself getting very irritated at people when they offered help, and then when they didn't offer help. My friends and family wanted to give me solutions to fix my problems, when I just needed them to listen.  I decided early-on that the only person who was going to feel sorry for me was ME.

    As hokey as this may sound to you, find a body/mind method that you enjoy - meditation, breathing, positive affirmations, journaling... Close your eyes, give yourself a hug, and know that you're going to be alright. Not the same as you expect or want, but you're going to be OK!

    Check with the NMSS office in Hartland to see if there's a support group in your area. People who know what you're going through can be very helpful.

    Good luck finding what you're looking for. Just give yourself a break and give yourself time to get used to all of this and grieve.

  • AquaGoddess

    Well, MS itself can lead to depression, as can many of the therapies used to delay progression of the disease and the drugs used to treat symptoms. On top of that, you have to become accustomed to the new normal for you, which is always a challenge. I thought I handled it quite well upon my diagnosis 12+ years ago, but I was having erratic mood swings, so I entered talk therapy and was prescribed a mild antidepressant, both of which helped.

    Despite that, however, when I had to leave work about 7 years ago because I was no longer able to maintain my position with integrity, I suffered a deep depression that lasted nearly 3 years. It took a change in attitude and seeing myself die slowly, one day at a time, to get past it. And, while I no longer participate in talk therapy, I'm still on the same antidepressant and I converse regularly with others who have MS and those who do not. I realize that I still have well over half my life remaining to live, and I want to suck every bit of marrow possible from that life.

    What really helped me turn the corner, however, was learning what I could do with my body and pushing myself to be as active as possible. I am continually looking for new ways to expand my abilities and this helps me keep everything in check. And, when I do feel myself veering off into a depressive state, I talk with friends, I get out and walk, and I figure out how to be of service to others. Or, I eat chocolate or ice cream (smile).

    One thing you should know, though, is that you're not alone in this. We all have different experiences, but we're all part of the magical, mystical journey in the MS Clubhouse, and we're all here for you.

  • alisongatz

    I'm still in the process of getting an official diagnosis and my mood swings have been so bad. I snap at my family for no reason and I'll start feeling angry out of nowhere. The only thing I know to do is apologize if I snap, forewarn that I'm in a grumpy mood and put myself in time out (alone time) if I think I might say or do something that might hurt someone's feelings. 

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