Just so you know, I do not need a positive attitude. I don't need to look at things another way. I am aware that things could be worse.
I do not need adaptive equipment, physical therapy, or occupational therapy.
I need help with the laundry, someone to help me with my dog, somebody to vacuum, dust, and clean the grout between my tiles. I'd like to buy things at Ikea, but it's an hour away and if I drive that far then shop I'll be too tired to drive home. I need help with shopping a lot. I don't have the energy to go to the mall, go from store to store, hunting down what I need, trying things on. Online isn't much easier... then there's all the returning... I need help with groceries - buying them, cooking them, cleaning them up,...
Maybe I could afford to hire somebody if I could have a job. Unfortunately, by the time I got up, got dressed,...I'd be too tired to work.
I understand that. I'm relatively new to all this and my symptoms so far have been fairly mild but he dismissive way people talk about it (especially loved ones) really gets under your skin
I was half blind in one eye for 6 weeks and nobody could tell me if I would get full sight back.
That is terrifying. To not know when your own body will betray you like that, in what way next or for how long. I pannic every time I sit too long and get pins and needles because last time that I had that feeling on my lip it spread to half my face and was told by my dr to try not to choke.
The "it could be worse" yes, it could. But it sure as ***** could be better too.
Hang in there :/
I believe there are volunteer/interns associations in your area that can help you out.
Please give us a call at 800-344-4867, option 1, to speak with a Navigator. Sometimes there are local volunteer programs or financial assistance programs to help pay for some of these chore services. Our navigators can help you look into the programs that may be able to help in your area.
I hope to hear from you soon!