I agree with anywhereoutofthisworld, it really is how does MS NOT affect me. I can feel it everyday in some kind of way. It makes getting up harder, all I want to do is sleep, but when I need to sleep it makes it hard for me to fall asleep. It affects me at work directly and indirectly. I look perfectly healthy, so when I say I need an extra break (which is usually just the breaks I never take) or am going just a little slower, coworkers who don't undestand just think I'm being lazy. It affects almost every decision I make. How far in advance should I make plans? I dont know how I am going to be that day- this weekend for example I had a trip planned, but I can barely walk without an excruciating amount of pain lately. I am planning on going to PA school if not Med school, am I going to be able to handle the stress, the demands, and if so once I have reached my goal, am I going to be able to do the job.
Good news lately, is fantastic news, I treasure every good moment- however bad news lately just starts a plummeting cycle back into the depression I have fought since middle school. So much as me not being able to take a tv stand off my tv has made me start bawling (I blame the medication for that- or thats what I tell people)
The constant drs appointments, and lab work, and who knows how many needles have entered my skin in the past year with IVs, blood tests, and my medication. I always have some sort of migraine at all times of the day, my legs like to give out without warning, I can barely feel my right foot and have recently discovered its the same with my right hand. Some days it is hard to drive, my vision gets blurry and I am dizzy a lot.
Its a terrifying disease to me, I could go my whole life being just as I am right now, a few flares here and there, or I could get way worse, and if I get worse WHEN will i get worse. Will I wake up tomorrow not being able to walk or feed myself or will I wake up in 30 years like that. That is probably what affects me the most- the fear of the unknown. I can and do ignore it and get on with my life and trying to enjoy it and grow in it, but there will always be those random moments I am all alone with nothing but my head to listen to that those thoughts trickle in.
I am 22, Besides the people I have met here, I dont know anyone personally that is my age who is going through this or anything like this, which can be hard not being able to share experiences with people who are in the same stage of life as I am. I definitely agree that the question is how does ms Not affect you, because there are so many different parts of your life that it does affect.