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  • DR2018
    Do any of you go to a gym or participate in some sort of activity or sport to help strengthen, improve, or slow down the muscle weakness? I know there are different types of MS and everyone progresses at there own pace. What do you do to help your body?
  • maria1
    I was jung ho on everyything, running at the gym, stationery bike swimming yoga, treadmill walking, hiking, got myself intensely active then it always collapsed, bad knees and bad back from things other than ms. Stretching too. I have found that muscle relaxing techniques have helped me the most, I can tense and relax all the muscles any where any time, all day long. 

    It was all so wnderful, I would be so pleased with myself and then I would just drop and feel worse than before, even the exercises the orthapeadic surgeon gave me instead of replacing my knees, it was great and beautiful and then just wore me out.
  • radarsmom
    I used to love fast paced exercises... aerobics classes, dance parties, elliptical running. But I don't like them now because they've become too difficult. I've discover I enjoy yoga and the pilates reformer. My body gets a great workout with not as intense hard pounding movement. When they say "pound the pavement", that's me. I walk really heavy so even going for a walk can be a challenge, but I enjoy a spin class or TRX class every now and then. The important thing is not what you do, but that you move somehow. 
  • maria1
    And you have motivated me again. i have, in a very small way revisited the exercises the PT gave me, I feel more glued together. Since I sit a lot the hip exercises are meaningful, laying on the bach moving both knees to touch one side of the bed then the other, my miserable back is feeling a strength, a tiny bit. Now the trick is to find the right level of exercise to not push the msucles over the edge.Will I ever learn, giggle.
  • golgotha
    Now the trick is to find the right level of exercise to not push the msucles over the edge.Will I ever learn, giggle.

    Ah, learning is sometimes overrated (says the former teacher:-). With exercise the key is the doing.

    Don't worry, push the envelope too far and suffering the boomerang effect enough times, then feeling the guilt/stiffness of not exercising because you did too much, I have a feeling you'll automatically adjust to hit the sweet spot -- no thinking or learning required. :-)
  • golgotha
    Exercise and physical activity is mandatory in my book!

    Yes it sucks. Yes it can be literally painful. Yes you're sapped with no energy. But my attitude is "suck it up buttercup" because when I do not exercise I can feel myself stiffen and lose mobility.

    Having been forced to use a wheelchair for short periods, I can say wheelchairs suck and I don't want to go there; so I suck it up.

    For me I stretch multiple times per day. If we were to go out to lunch I might do a fetal position squat after sitting for an hour because my legs can be that stiff. Oh well, I don't care about looking weird, that's what 30+ years of diagnosed MS has taught me to do to stay mobile.

    I go to the gym multiple times per week and work out with weight machines, kettlebells, etc. The room at my house I'm sitting in now has dumbbells on the floor (that don't get enough use!). You get the picture -- my attitude is "use it or lose it."

    For aerobics and heart-related stuff I do some swimming at the gym but that's sort of a hassle. Everything from the getting dressed/undressed/shower routine to the idea that laps suck out energy in an obscene way.

    So my main thing for aerobics is to ride a recumbent trike. My equilibrium is such that sometimes I walk like a drunk, so 3 wheels are needed with a bike. Recumbent bikes are stupidly expensive (any bike/trike will do) but recumbents are amazingly comfortable.

    But the ability to peddle like a madman and rest/coast as needed (here in IL the land is flat so peddling is easy) is a godsend. Plus, I honestly think that the varied tasks your eyes are doing when riding a bike -- focusing short-range and distance vision ideas -- are good for one's eyes.

    I'm not a "fitness class" kind of guy and I haven't gotten into yoga. Finding the "right" class (that's cheap/free, slow-paced and not run like a drill sergeant -- yes those yoga classes exist!) is a task on my to-do list.

    But by all means, ensure you're doing something for exercise and to retain mobility. Expert doctors in MS and long-time MSers seem to agree: it's a critical component for longevity. Or as one doctor puts it, one of the 4 keys in being 4 for 4 in your struggle against this damned disease.
  • rajiah
    I used to go to gym long time ago, and i was doing great but now i’m always busy at work, don’t have time for myself. 
  • theexamplekek
    Realy good!