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Health Insurance

Compassionate Expedited Reinstatement *

I don’t understand why so many professionals, that deal with MS claims, are so misinformed: When I would speak to an Advocate or a SSDI Lawyer, (most that I contacted never responded), those that did respond informed me one of the following:You have to start a new claim & start from scratchThere is no such… Read More


I am curious if others have had issues with Anthem BC/BS not covering Ocrevus.  It would be a Tier 4 drug if they listed it in their formulary.  They do not. I am lucky to have one of the best neurologists in my state and in the research we have both done, we found Ocrevus to be the best potential… Read More

Tecfidera and Aetna

Hi everyone, I have been having a VERY difficult time getting Aetna to approve my tecfidera prescription--specifically, they are denying it bc they want me to take some other drugs first and 'prove' i suffer on them. I was diagnosed a few months ago and am very frustrated that they are trying to force me to… Read More

How do you afford medication?*

Hi all, So even with insurance, Anthem BC/BS and medicare, I cannot afford any medication and haven't been able to afford any MS medication in nearly 14 years. I live well below the poverty level (it is 10,000k a year for one, I live off of 8k a year for two), and despite having earned multiple degrees, I have… Read More

The ACA passing the House. *

With the ACA act passing the house, I admit I am scared...beyond what is anywhere near healthy. I know, that it is not final, and still has some way to go, but in my panic, I want and need to start planning ahead. At the moment I am covered by my father's insurance (under 25), but I do not know how the new ACA… Read More


I am a 63-year old woman who was diagnesed with RRMS in 2010.  The best I can say for it was that it came as a complete shock.  At the time of my diagnosis, i was a successful Florida Bar Board Certified Labor and Employment Lawyer, litigating cases on behalf of individuals who suffered wrongs at the hands of… Read More

Insurance Aggravations*

I just wanted to put this out there as a genreal curiosity. For the past three years I have been unable to see my neurologist, who works at the only MS clinic in my city, because my heath insurance changed. There were all of a sudden massive co-pays and I just couldn't afford her. Thankfully, I will be going… Read More

Mother with advanced MS*

Hi everyone, my mother is 56 and has been diagnosed for nearly 20 years. She has very advanced ms. We can no longer walk for care for herself.  My concern is that she is alone for most of the day while her husband is at work. She needs full time care but can not afford it.  I live in houston, she is in… Read More

Frustrated with all the hoops *

I've been without insurance and meds since 9/1, thought medicaid was coming, but no. So now I've done research and got some quotes, but I'm still confused. It seems I would be better if I wasn't married or he didn't work, any suggestions would be great to help clear up my confusion. Thanks, tiffany Read More


In short I am having a massive insurance issue due to my employer mistake. I have MS like all of us, and like everyone painfully knows it comes it a commitment to high insurance bills on a regular basis. I took a role at company (beginning this year) who was not based in my state. We quickly found out their… Read More


I became eligible for Medicare on 8/01 and being prudent, I looked at all the different HMO's and picked the one that would allow me to stay with my doctors and have prescription coverage. Unfortunately when I tried to refill my Extavia I was told that my co-pay was a little over $2,000! I've contacted every… Read More


my husband has MS and is on the three times a week copaxone shots. They seem to have helped keep the MS at bay. He's always been on my insurance through my work because his was too expensive and didn't cover much. 'My insurance always covers all of his meds. I'm leaving my job at the end of the month and I'm… Read More

Financial Aid for treatment*

Hi there, my name is Dale Grana from Philippines. I have a brother officially diagnosed with MS last year but the onset of his symptoms were first observed last 2011. We thought that it was just a simple symptom of vertigo but it was not, it was something far more complicated than vertigo. We went to Cebu City… Read More

Feeling lost*

Hi everyone. So, I wanted to see what insurance everyone else is on. I only have a little bit more time being covered on my moms insurance before I am going to have to figure something else out. I live in California and have been looking for a full-time job with benefits but that is nearly impossible. Plus… Read More

Gilenya Drama *

I'm so sick of the round and round blame game and lack of responsibilty between Neuros, Insurance, and Medication Reps (Gilenya)​I stopped Aubagio Feb 26th. Had my follow up with Neuro, EKG, and Opthomologist appnt on March 8th. It took Gilenya Go program weeks to reach out to me so I had to call them to find… Read More