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  • ima1eyedgrl
    I became eligible for Medicare on 8/01 and being prudent, I looked at all the different HMO's and picked the one that would allow me to stay with my doctors and have prescription coverage. Unfortunately when I tried to refill my Extavia I was told that my co-pay was a little over $2,000!
    I've contacted every organization that provides help for co-pay assistance but I have been turned down every time. 
    The manufacturer, Novartis, is not willing to help either.
    Please, please, help me find a solution. I have been without my medication for a week already and I don't know what will happen if go all month without it.
    I am able to change my insurance plan on 9/1.
  • TheBillLarson
    Check with any and every MS organization you can find via an internet search. NMSS I believes has a program, as does the MS Foundation and MS Association of America I believe. There may be others. Maybe contact the NMSS Navigators via phone for more immediate information.

    I'm sorry to hear you are in this situation. I hope you are able to find resources sooner than later, and I hope the ones I mentioned at least provide direction as to the right path.
  • Bjulia
    Hi, I'm so soryy to hear about the troubles you have been having. Have you heard of the drug company Biogen? I'm not sure if they provide Extavia, but I get Tecfidera with them with a $0 copay and they have been so helpful. Here is their phone #: 800-456-2255. Best of luck!
  • MS_Navigator_Steven

    This is Steve with the National MS Society. 

    I'm sorry to hear you are having such a time trying to obtain your Extavia.  Here is a link which will take you to informaiton on various resources to help with the cost of meds.  Hopefully, there are some options you haven't tried yet.  I would also like to encourage you to contact our Information Center at 1-800-344-4867 should you need assistance exploring options for Medicare plans during open enrollment.

    Take care,

  • levo12
    Overheard somewhere near the shores of the Potomac:  "If you like your co-pay, you can keep your co-pay."
  • capitolcarol
    And you didn't hear them mention what plan or drug there were referencing while you were eavesdroppinig.  I think a lot of people would be happy with this if it were true.
  • Sukie427
    Unfortunately, it isn't that Novartis won't help, it's that Novartis can't help.  Since you are on a government-assisted healthcare plan; i.e. Medicare, the anti-kickback provision of the Social Security Act prevents you from being eligible for the drug manufacturer's patient financial assistance program.  Call your Congressional representatives (House and Senate) and tell them that you want the Act amended to allow patients on government-assisted healthcare to be eligible for financial assistance from the drug manufacturer, and remember their responses when you vote.  Also, go back a few posts and please sign my petition on to effectuate this change.  Thanks and good luck.