Search Discussions

Main Content

Family and Friends

MS Navigator Jess

Good morning!  Are you looking for support or resources?  Here is a collection of helpful organizatoins, resources and information below, specific to caregivers and carepartners, friends and family.  Check them out! Caregiver.com Coordinates a national network of support groups, financial assistance and… Read More

SaraB23
Describing Vision Issues*

People keep asking me HOW my vision is blurry… i feel like I have too many words AND I cannot get them out.... spots, squiggles, trouble with focus…especially when moving eyes between things. Sometimes I have a hard time reading… not like a migraine aura but kinda not… still my co-worker presses for more detail… Read More

beth19
living with someone with MS

Some one I love dearly has been diagnosed with MS about one year ago ... they have become defeated not doing anything they are suppose to be doing to help the situation.  As a concerned family member could someone please help me motivate them to help themself?!?!  I am at a loss watching this person's symptoms… Read More

Chris-support-for-people-living-with-ms

Hi. My name is Chris and I'm new on here. I would like to help support all those who live with ms, individuals and families. I would like to offer my support for families and how the whole family copes. Although I may not be able to answer specific question, any questions I can help answer, comments, or support… Read More

lav9142
Family not Sympathetic *

I always believed that you should never cut family out of your life. I am newly diagnosed 1 year. I have my good and bad days. My immediate family - husband and children are great!! Very supportive but my extended family brother, sister in law, mother in law - never ask how I am feeling and believe that I am… Read More

showmestate
Husband with MS is Mean *

To be specific he is mean only to me. He is a delight around his friends and family but to me he is picky, critical and snarky. He had these qualities before MS and he was “working on this part of his personality” as I explained it made me feel horrible. Some days it’s “I’m working on it” others it’s “you knew… Read More

noorbaccus
Angry*

My son aged 24yrs started to complain of vague symptom around 2017. His personalIt's changed a little he got irritable quick.  In 2018 February he got married after 3 years dating Melissa.  In June he woke up with blurred vision he phoned me I realised what was probably wrong .  His wife was dismissive of him… Read More

rblackman
Family & Loved ones*

Hello,  I have recently been diagnosed with MS; and of course when I found out, I was upset, but what upset me even more was when I told my Fiance about it. The look on his face just broke my heart even more. He is very upset by the diagnosis and is choosing to stand by my side through whatever, which makes me… Read More

MegFev
Has anyone with MS done IVF?*

This is a bit of a long story and I apologize for that but feel I need to explain my whole situation (or maybe I'm trying to justify my decision...) I've wanted kids since I was a kid. I've always wanted to experience pregnancy, at least once, and being a mom is a huge dream of mine. So I worked with my… Read More

rioplayer
Isolation*

Hey all. Do you feel isolated from the world due to your symptoms?  Do you feel utterly alone. I do. I am 61, Have been on disability for 8 years. My ex left me shortly after I went on disability  and  I have NO friends or family living near me. It is so bad that I refuse certain treatments and tests that… Read More

breeanne

Hi! I just wanted to pass along information on our new MS Caregiver Support Group in the Charlotte, North Carolina area for anyone who may be interested. We are hoping to meet once a month and will be utilizing our private Facebook group to help support each other on a day-to-day basis. We will be having our… Read More

Coulter
Living with anger as a caregiver *

My husband and I have been married for 23 years. He is 12 years older than me. He is 74 and I am 62. This age difference is hard. He was diagnosed at about 55. He has had a pretty good time of it physically. He has just started using a cane and has really slowed down significantly with walking and getting… Read More

lovereign
Dear Diamond T.*

I knew you but I didn't get to know you as you could not speak. I do know that you are a good soul and your spirit shone through your eyes. I could tell from what I heard about you that you were both independent and resilient. You also were not one to be in denial of the truth. You loved the truth and knowledge… Read More

lovereign
Dear Dave,*

Although I only knew you a short while, you left a positive mark in my life still. I respect the choice you made to go home. In fact I think it courageous not cowardly. I can only imagine the pain and isolation you felt those months before. We all should have the right to choose how we go especially since we… Read More