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MS Navigator Jess

Good morning!  Are you looking for support or resources?  Here is a collection of helpful organizatoins, resources and information below, specific to caregivers and carepartners, friends and family.  Check them out! Caregiver.com Coordinates a national network of support groups, financial assistance and… Read More

red100
Try more video games*

About a week ago, I did a post about how gaming helps me with my MS.  I wanted to elaborate on that claim by doing a few more write-ups as to why it can help.  The first topic: Visuospatial ability. When I mentioned to my neurologist that I streamed video games for money, he gave me that "look" but then… Read More

tkelman
custody of my daughter*

I just went through a major custody battle with my ex.  In court his lawyer tried to use my MS as reaon to not have primary custody of my daughter even though I was always her primary caregiver.  My lawyer was unprepared and never prepared me for the interrogation I recieved on the stand I wasn't even told that… Read More

khali20
Newly Diagnosed Family Member *

Hello, My 19 year old daughter was diagnosed with MS in March of this year after losing vision in her left eye. She still hasn't regainded her vision and is reluctant to start meds. Is there anyone here dealing with or have dealt with the same issues? I feel helpless at this point... Read More

mom_of_mser
Ocrevus symptoms*

Hello, I've never done this sort of thing before, I don't know how it works. (Posting that is) my daughter has had ms since she was 20 she is 33 now. She is about to take her 3erd infusion and we both would love to hear from others with ms that have had ocrevus and what symptoms they had afterward so she can… Read More

rblackman
Family & Loved ones*

Hello,  I have recently been diagnosed with MS; and of course when I found out, I was upset, but what upset me even more was when I told my Fiance about it. The look on his face just broke my heart even more. He is very upset by the diagnosis and is choosing to stand by my side through whatever, which makes me… Read More

heatherangel

hello im new to this group and i joined because i dont know where else to go. my husband was Diagnose with MS in 2008. i have been his support system since day one. i had the option of not marrying 9yrs ago but, because i was committed to us, loved him no matter what i married him knowing what MS was and what… Read More

smallgalaxy
Just how alone am I out here?

I just joined.  I don't have MS.  My wife has "severe idiopathic demyelination of the central nervouse system". Numerous white matter brain lesions and brain atrophy. She is legally disabled. She suffers from severe dementia and depression.  I don't have the means or ability to care for her in our home. She… Read More

Eric8
MS and cognitive impairment

I'm not sure if I am posting in the correct forum but here goes… My wife was diagnosed with MS in 2005, she began a strict diet (mostly vegan, dairy free, gluten free) and started on Betaseron in early 2006.  She has done amazingly well, with only one minor exacerbation since she was diagnosed.  In Feb of this… Read More

killerkatien
Understanding multiple sclerosis*

I'm getting alittle frustrated lately and I need to get some advice, or insist on this subject. I have been dealing with MS for almost 2 years now and I have been constantly told by people without MS or people who do not understand that it's a snowflake disease and no case is the same, "I know someone with MS… Read More

Ilvmyhsbnd
Help! I am losing my husband! *

Hello! I am new here. I am not sure why it took me this long to find this community, but I have. Perhaps because I am desperate to help/save my husband. I'll try to keep this short, simple, and to the point. I have known my husband for 16 years, however, was not a part of his life when he was diagnosed. Since… Read More

mercymalas
Both Parents Have MS*

When I was ten years old my mother first showed symptoms of MS and died two years later. I am now in my twentys and a year or two ago my father got into a car crash and found out he also has MS though of a milder strain that doesn't show symptoms much yet. My parents are of different races and from… Read More

msfish
MS and a Familys Death*

A Grandma with MS and a Family Death      Today is October 9th. October 7th was my grandson's birthday. He passed away June 30th at 1:40pm. He would have been five years old. He was a very sweet boy who had a lot of illnesses wrong with him.      He was born premature to start off with. He was normal in every… Read More

Santi

Hi, it's been a couple of month since my wife and I decided that this year we want to have our first kid. I've always known that women have to stop treatment if they want to become pregnant but up until now nobody (including my doctor and Biogen) has been able to tell me if there is any danger for the baby… Read More

ravipeace
MS and marriage *

Dear friends, I am 32 M, new to this wonderful site. I am seeking your kind opinions  about going into marriage with a 30 F, (MS for last 10 yrs) in arranged marriage. I am doing so as I came to knwo about it few days ago.  Since I have done a little research and internet seems divided.  I have met once only in… Read More

larryw1
New to this site*

I'm new to the site. I'm a caregiver dealing with my wife who has MS. She's had it since 1999 but in 20008 had a major exacerbation which we're still dealing with. She is slowly getting worse. This is due to a variety of reasons. (Her own health, doctor's mistaken advice, etc.) She is now in a wheelchair, but… Read More

Bud
Depression*

My sister lives in Houston and has MS. I live in another state. I believe she is suffering from depression. She doesn't leave the house and doesn't do anything. Can someone recommend a psychiatrist, preferably one that will take her medicaid Read More