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  • MS Navigator Jess

    Good morning!  Are you looking for support or resources?  Here is a collection of helpful organizatoins, resources and information below, specific to caregivers and carepartners, friends and family.  Check them out!
    Coordinates a national network of support groups, financial assistance and resources for caregivers in both urban and rural areas of the U.S., offers magazine Today‘s Caregiver and newsletters on caregiving.
    Phone: 1-800-829-2734 x120

    Caregiver Action Network
    The Caregiver Action Network educates, supports, empowers and speaks up for loved ones dealing with a chronic illness, disability or the frailties of old age. They have an online family caregiver support forum; enewsletters with tips for caregivers; opportunities to provide their stories; and a network of volunteers who are or have been caregivers and who represent the caregiver communities at local and state levels.
    Phone: 1-800-896-3650

    CaringBridge provides support for anyone facing a health condition big or small, acute or long term.
    CaringBridge provides online support for people to post updates on health conditions; post what they need help with so that family and friends know how to be supportive. The purpose of this service is to assist people with staying connected and receiving the emotional support they need with one simple post on their personalized website.

    Family Caregiver Alliance®
    The Family Caregiver Alliance provides information to educate and support family caregivers.
    They offer a service called the Family Care Navigator, which is meant to help caregivers navigate government, nonprofit, and private assistance programs.
    Phone: 1-800-445-8106

    Multiple Sclerosis Foundation
    The MS Foundation offers a variety of services for people living with MS, including a Homecare Assistance Grant Program providing direct support on a temporary basis.
    Phone: 1-888-673-6287

    A chat and message board site for people with MS, family members, and friends. It provides a safe and comfortable environment, offering the latest information and referrals. The website is moderated by people with MS who understand what it means to live with this disease. MSWorld also provides educational teleconferences, free webcasts, and various chat room topics such as Laughter is the Best Medicine, Primary Progressive MS / Secondary Progressive MS, Caregivers Chat, Newly Diagnosed, Family and Friends, Parents with MS.

    Strength for Caring
    Strength for Caring is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration and much needed support.
    The website offers articles on how to care for yourself while caring for others, tips for daily care, information about health conditions, message boards for advice and support and a resource center. Information and resources are also available by phone.

    Well Spouse Association
    The Well Spouse Association provides support and education for spouses and partners of people who are chronically ill and/or disabled. The Well Spouse Association coordinates a national network of support groups, among other services.
    Phone: 1-800-838-0879

    Have a great weekend!!


  • Prayerful

    Thank you so much for this information. My loved one was diagnosed with MS the week before Christmas and we are trying to get all the info and support we can.  Bless you!

  • moxieblonde

    Thank you for this. I printed this out so that I can show my loved one that I really am trying to understand and be proactive since he seems to think I dont understand any of this....meanwhile I am the one that has done a ton of research on MS.  I need to learn how to take care of myself at the same time as I am becoming increasingly angry that I have to do everything and have let myself go.....wont do any good if I am not healthy also! Thanks again, Karen

  • galgirl

    Thank you. I've been having a hard time lately with my husband's MS diagnosis. Will look in to some of these!

  • nettiekay
     Thank you so much for this list!
  • mtk1519
    Thanks so much for this information, Jess.  This is the first time I have ever been on this site.  I have been a Caregiver going on 22 years.  It seems like more recently that things have become much more difficult than ever before, and was at a loss of what to do for my own mental health.  I'm hoping these resources can point me in the right direction.  Really appreciate your post on these resources for caregivers.
  • MS_Navigators
    You're so welcome!  Post or call us if you have any questions :)

  • MS_Navigators
    You're so welcome!  Post or call us if you have any questions :)

  • maria1
    Hi Jess,Caregiver wellness? Without support groups and strong individuals willing to give we are all in emergency situations all the time. As long as caregivers ask for help or recognize they can not nor should not do it alone we have a chance for a better life, thank you for the resource list.