MS Connection

My husband is getting ready for another Modified Barium Swallow test next week. He had one a year ago   Oh is he excited about it ( I kid here, he is not really looking forward to it at all).  The test had to be stopped last year before it was done because he got liquid in his lungs which made him very… Read More

During this Friday’s — August 14 at 1pm ET — Ask an MS Expert program Dr. Scott Newsome from Johns Hopkins will discuss MS therapies. Whether you are newly diagnosed, experiencing breakthrough disease, or advanced in age or progression, learn how you can stay informed and work with your healthcare providers to… Read More

August 13, 2020 Please note: the Letter to the Community has been updated. Phase II, which eliminates interactive functionality such as the ability to post and reply to discussions, will be turned off on Monday, August 31. Please see the Letter to the Community for full details. Thank you for your patience… Read More

The most noticable problem for me is the slow decline in thinking straight. Given enough time to think about a problem on my own and it usually becomes clear, but conversing with others  and I can say or think dumb things. I've been combating the memory problem for years now but it keeps slowly advancing, so I… Read More

For the past two years I have been having odd symptoms off and on... It seems I will have the issues for a few weeks and then they go away for a while and come back. It started by having issues starting to urinate and not being able to fully empty my bladder. I would go to my primary get tested for a UTI, but… Read More

During this Friday’s — August 7 at 1pm ET — Ask an MS Expert program, Dr. John Ciotti will share the latest information on vaccine options and the implications for people living with MS.Learn More About the Webinar Can't make the day or time? All webinars are recorded and can be viewed at any time. Read More

Hi everyone. I have another problem with my husband.  Back in May, I got upset with him and decided it was time for separate rooms. He didn't like our mattress ( he'd slide off of it),  he wanted the head and feet elevated so he could sleep , (I needed it flat for my back), he wanted to bring handfuls if dirty… Read More

During this Friday’s — July 17 at 1pm ET — Ask an MS Expert program we will discuss health literacy with Dr. Kalina Sanders, MS Neurologist, and Sherry Perry, MS Navigator.Learn More About the Webinar Can't make the day or time? All webinars are recorded and can be viewed at any time. Read More

Hello,  My name is Ky, I am 25 years old, I’ve met someone special and we are living together, as he has never met someone with MS, I have SPMS, my time in RRMS was brief and only endured 3 relapses before they said my progression is steady. He’s never showed impatience but I worry he might, how do I deal with… Read More

During this Friday’s — July 10 at 1pm ET — Ask an MS Expert program we will discuss how you can recognize and manage invisible symptoms such as pain and fatigue in MS.Learn More About the Webinar Can't make the day or time? All webinars are recorded and can be viewed at any time. Read More

It took ten years to find and begin treatment for my Multiple Sclerosis.  What I learned during my wife's five year battle with breast cancer and recovery gained me the experience I would need to find the right team, of whom I could ask the right questions and help me get the proper tests to find the smoking… Read More

During this Friday’s — June 26 at 1pm ET — Ask an MS Expert program we will talk with Dr. Miller who will share learnings about the COViMS registry, guidance on MS disease modifying therapies, progress on a vaccine, and how to protect yourself and others.Learn More Can't make the day or time? All webinars are… Read More

During this Friday’s — June 19 at 1pm ET — Ask an MS Expert program we will focus on disparities in MS healthcare to get a better understanding of how the overall healthcare experience and health outcomes can be different for underserved populations, what we are learning from research around this and what… Read More

During this Friday’s — June 12 at 1pm ET — Ask an MS Expert program we’ll have a discussion with Dr. Allen Bowling on integrative medicine to optimize health in MS.Learn More Can't make the day or time? All webinars are recorded and can be viewed at any time. Read More

I want to entirely delete my account -- entirely.  If no one can benefit from what I had to say, I want to erase any identifying information about me from the world wide web.  This is in response to the decision to eliminate this site in september, 2020.  Please -- MS navigators -- delete my account for me. Read More

I want to entirely delete my account -- entirely.  If no one can benefit from what I had to say, I want to erase any identifying information about me from the world wide web.  This is in response to the decision to eliminate this site in september, 2020.  Please -- MS navigators -- delete my account for me. Read More

Hi All  Has anyone been to Mayo in MN for MS and could they share their experience? I am newly diagnosed and would like to go to Mayo for a second opinion on medication and treatment. I live about 4 hours from Mayo and I'm trying to understand how much time I spend there on the first visit. They said that they… Read More

My son is 20. He is newly diagnosed. Currently, he doesn't want to talk about this disease. His neurologist recommended he start on Ocrevus. We are scared out of minds about some of the side effects. I am looking for answers regarding side effects. Can anyone who has taken this drug tell me what side effects… Read More

During this Friday’s — June 5 at 1pm ET — Ask an MS Expert program we’ll look at addressing MS Throughout Life Stages. Experts will discuss planning for MS through different stages of life – during pregnancy, pediatric MS, and MS in adulthood and later years.Learn More Can't make the day or time? All webinars… Read More

During this Friday’s — May 29 at 1pm ET — Ask an MS Expert program we’ll look at the additional challenges of the COVID-19 crisis in maintaining health and wellness with MS, including maintaining emotional wellness during this time and handling the additional stress and the potential impact it may have on… Read More