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Reinventing yourself *

Hello everyone,  I am very excited to be here and have the opportunity to ask you all questions. I feel so safe and happy here that I don't need to explain myself and symptoms, that we all get a sense of each other's condition without knowing it exactly. This empathy is so precious and also very vital to us… Read More

Learning about MS*

Hey guys, I'm a student who's taking an anatomy class at school. Part of the class is a a chronic condition project in which we have to learn about a certain disease. The chronic condition that I got assigned to is MS, and I was wondering if you guys would be willing to share your experiences with MS :) .  Read More

Menopause & MS*

For those who have "gone through the change" with menopause, how has it impacted your MS?  Can you tell it's menopause symptoms or simply age causing the changes in your MS?  Currently, what is the "theory" about menopause & MS?   Read More

I’m a caregiver who needs advice *

Not sure how to start so I'll just spit it out.  Some of you have read my story already.   A recap he has had ppms for about 5 years now maybe a little more, he has 25% of his heart working, 30% of his kidneys, has trouble swollowing, dementia is starting and now he has Obsessive Compulsion Disorder.   He… Read More

Health *

  I just completed my 3rd week of going to the gym 4x/wk. I'm stunned at how much better I'm feeling in such a short time. I'm pushing ahead further and this is where I could use some input.   I started looking at the Whole30 program. For those of you unfamiliar, it's a plan that restricts what you eat to… Read More

Disability at 38 *

I have been diagnosed with MS for 10 years now, and in August I was diagnosed with syringomyelia. Syringomyelia is a cyst inside my spinal cord and a couple months away from my 39th birthday I have filed for disability....  Read More

What am I going to do?

I'm 33. I have just been released from the hospital with a diagnosis of MS. I can't feel the floor under my feet, which leads to balance issues, but then, I was clumsy to begin with. :)  I also can't feel my lady bits as well as I used to, making it harder to have a fulfilling sex life.  I'm telling the world… Read More

I am speaking like I'm southern? *

Sometimes I get ridiculously tired. Sometimes it effects the way I speak... I sound like I am southern. (I have that Southern drawl.) It's not a super big deal... but it does make me feel like a little bit of a weirdo... I was born and raised in Colorado. We don't really have an accent, like that... people… Read More

Vehicle Adaptation*

Hello all.  New to the forum.  My wife was diagnosed with MS in 2006 and has slowly been losing her mobility. Recently, she has started having issues driving.  I was wondering if anyone can recommend any type of adaptive equipment for her car?  Also, any installer in New England (North Central MA… Read More

MRI no change for one year = no MS?

I've been to two different neurologists. The last one works in the MS clinic - but sees other patients. I started having symptoms 1 1/2 years ago. Initally as sharp righ sided head pain and dizziness as well as weakness. have been tested and treated for Migraines (which I do not have) and have had nearly… Read More

Mobility and Balance Challenges *

I recently started the MS society’s Free From Falls program. It’s an eight week program with a combination of lectures and exercises.  Week 1 was a good start on the data of falls, risk factors and how to manage the risk.  We did timed baseline… Read More

Anything that helps fatigue ?

Hi , My name is Laura. I am in the process of getting a diagnosis. I had my MRI done yesterday. I have had these crazy symptoms for many years. At the present I think the fatigue is the worse for me right now .I also have fibromyalgia ,depression and extreme muscle weakness and balance problems. Taking a shower… Read More


Hello everyone I'm brand new on this forum, although I've been living with MS for around 7 years (at least I've been diagnosed for that long anyway!). My current medciation is the Avonex Epi-Pen which I take once a week. I had a minor relapse last December and my doc now wants to switch me over to Gilenya. I… Read More

My neurologist underestimates my symptoms*

My main symptoms are cognitive, depression, fatigue, and leg pain & weakness. Issues that aren't exactly visible. I began seeing this neurologist a year ago and am applying for SSDI so I don't think switching doctors would help my case. She spends our appt's dictating to her computer instead of listening to… Read More