MS Connection

There is one question to ask yourself: If you dont try, how will you feel? Will you regret missing the opportunity? Whether or not you achieve your goal of getting the phd is secondary. It is not a matter of succeeding, it is a matter of giving it a shot, using your best effort, giving it a go. So you will not… Read More

Gratitude helps to lift our eyes off the difficult things in life so that we can see the things in our life that are good. Being thankful helps you to establish a positive pattern of thinking. It also helps reduce stress and makes you more content. When you delibrately focus your attention on the blessings in… Read More

Hello all! I am reaching out to this community to see if anyone has experined the same thing I'm struggling with right now.  I was diagnosed with MS in January of 2018 and am currently on Tysabri infusions.  I started the infusions September 2018, and that's when I first experienced what I call "episodes".  I… Read More

After almost 4 years since being diagnosed with MS. I still wonder how in the world did I get MS!! No one in my family has MS nor any other autoimmune disease. So makes me wonder if it was something environmental that caused it. Do you have family members with MS or are you the only one in your family? Read More

  A question for chair users:  1) What was your moment when you decided to start using a wheelchair? One of my struggles with MS is that there is no defining moment like when a person has a spinal cord injury. It’s always and endlessly a question: When do I use a cane? A walker? A wheelchair? If I fight harder… Read More

Anyone knows people that have diabetes type 1 and multiple sclerosis? How they lead with this two "life challenges "? Thanks Read More

Hello, my mom have ms. Today i was with her at shoping and she get tired pretty fast, after like 1500 meters of walking she get tired and her muscles hurt. She need to hold me up by hand to walk good. Can you suggest me please what she can do/eat for a better condition? And what i can do to help her more, i… Read More

Hi Everyone, My name is Amanda and I’m 29... and 16 months.... I love living with my parents but it’s time to go-my boyfriend and I are ready to start a life together but we’re experiencing a road block that drives us crazy.  I applied for Section 8 housing, but we were denied. Every time we find an… Read More

I was told I was in remission. When my neurologist told me she said it may last or if it goes into relapse hitting hard. Opinions please! Read More

Has any one experienced a stabbing pain in the ear.  This pain doesn't last long just comes and goes at times.  I am noticing different things happening lately and I have been dealing with MS for just about 20 years now. Read More

Does anyone have symptoms when they use artificial sweeteners? I've been looking into a few protein shakes to drink after my workout, but a lot have sucralose.  Read More

Here is my story. 8 years ago I started having trouble speaking, exhaustion, memories. Went to the doctor and had a seizure in his office. Transfereed to ER and admitted for a week. All sorts of tests all normal except white matter scar tissue but nothing of importance as everything else was normal. Chalked it… Read More

Hi everyone, is anyone on one of the two generics for Copaxone? Has it been working the same as Copaxone? Read More

I want to share the following story from a Max Lucado book. "It seems a couple of prowlers broke into a department store. They did what they came to do and left undetected. They took no merchandise. Nothing was removed. Instead of stealing, they changed the cost of everything.  $5.00 on a camera.  $395.00 on a… Read More

Does anyone use a medical journaling app or software program to keep track of symptoms, treatments, etc?  After going thru the disability process, I realize it's mostly about documentation.  Seeking a good product I can use to supplement my doctor's notes in between visits. Any suggestions appreciated… Read More

I am having balance problems since my last exacerbation.  Increasing fatigue makes it dificult for me to be as active as I would like to be.  I have had no success in locating organizations for service dogs in my area.  How do I decide when it is the right time for a balance dog?  Are there any resources for… Read More

I'm seeking input from my fellow MSers.  In sum, I've been living in my deceased parent's home these past 10 years.  I'm on SSDI and have no family in the area.  I have limited resources for home/appliance repairs/replacements.  I'm at a loss of what to do? I've been on SSDI since 2012, and have the Low-Income… Read More

It's going to be 40 Celsius tomorrow here in Cairo-Egypt, if I went out for work tomorrow, would that affect me badly, as far as I know that heat is an MS enemy, so how much would that hurt me if I faced this heat tomorrow and the burning sun?!  Read More

Hello everyone,  A couple years ago, some of you might remember, I posted an conversation regarding my fear of losing my mobility.  Well its been two years now and none of the new medications (Rituxan and Ocrevus) have really prevented the decline in my mobility due to my secondary progressive MS.   I still… Read More

Hello I went to ent doctor told him my ear has been ringing and popping alot mostly does it in the car the popping does and sometimes its crackly sounding .but he wanted to know if I had vision problems I said just ocular migraine evey blue moon well he assumes I have ms now because of these symptoms..so I went… Read More