MS Connection

After 8 years on Copaxone, I switched to Tecfidera 10 days ago. I have experienced all of the bad side effects. Flushing was the worst at first. Then I got a UTI and a tender lymph node (my doctor thinks this is unrelated). The last 24 hours I've been extreme nausous, my stomach is burning. I even skipped last… Read More

  I just completed my 3rd week of going to the gym 4x/wk. I'm stunned at how much better I'm feeling in such a short time. I'm pushing ahead further and this is where I could use some input.   I started looking at the Whole30 program. For those of you unfamiliar, it's a plan that restricts what you eat to… Read More

Here it is the middle of the night, I am wide awake in an emotional crisis. One of the upper front teeth broke and can be capped, but the DDS says that the other upper front teeth will also fail eventually and the problem with waiting to cap the rest of the teeth is that matching the color will be difficult so… Read More

It is often that I have mentioned it is important to consider changing the way we think, well I am stuck and the only way I know how to get un stuck is to talk it out. Part of it may be that I have been in pain for the last several weeks with all the effort in maintaining the property the work that needs be… Read More

I have not been diagnosed yet with MS.  I have had the bad MRI on Nov. 4th.  The written report was pages long but my internal medicine doctor didnt understand part of it.  He referred me to a nurologists.  They called and the earliest appointment was December 31.  I questioned them being open. That was the… Read More

I am wondering if anyone else is has both MS and Crohn's?  I was diagnosed ~2 years ago with MS, and recently with Crohn's.  There is not a lot of info out there on those with both immune disorders, so I would love to talk with anyone in the same situation.  I am looking at med options for Crohn's, and again… Read More

Hello everyone -- I'm new to this board. For quite some time, almost a year, I've been experiencing progressing weakness in my legs to the point that I am now only able to stand for a minute or two without feeling like I am going to collapse. It is also difficult to walk for more than 15-20 feet.  I attributed… Read More

Hello to everyone out there! I was curious if anyone here has any information on possible grants or financial assistance for taking  classes? I start on April 10th for certified medical assistant and only qualify for $9500 in financial aid leaving about $6500 left for me to pay outright. I wasn't sure if this… Read More

My 18 year old son was diagnosed with MS this past summer.  He hasn't experienced any relapse, that we know of, since his initial symptom 3 years ago.  He's been having extreme difficulty waking up in the mornings for school.  I don't know if this is normal.  His neurologist prescribed Dexatrin to keep him… Read More

Hi my name is John, I've been volunteering at bike MS in Oregon for a couple years. Last year I was very inspired by those that were riding with MS. I said last year I'm not going to make any more excuses for myself. I also want to ride with MS next year. So because of a bike company called different spokes was… Read More

My mother died this year of "MS", a diagnosis given to her by her primary care physician two years before her death. She was 62 years of age and had "MS" symptoms for 34 years prior to her diagnosis. Before the "MS" title was given to her she had lung surgery for pneumonia, Hepatitis B, foot surgeries for poor… Read More

Hello All, i was diagnosed about a week ago, and now trying to decide on a treatment plan! I was given four medications to research and decide which I would like to begin on! Any insight you have to the following medications would be great in helping me make an informed decision!  Betaseron/Extavia Rebif… Read More

I have recently decided to stay home and work no longer. When or if i go out i feel overseas with people to close ot too many by me. Now i do not leave my house only for grocery shopping and dr apps. I feel safe at home. Anyone else have this? Read More

I was just diagnosed with MS 1 month ago. I’ve had lesions that they’ve brushed off as migraines for years. I’ve had about 4 mris in the last 2 years for other things, and it hasn’t changed until this summer with an active lesion. I also have Endometriosis, and was on Lupron Depot for 3 months. Lupron is a… Read More

I have had ms for 14 yrs. lately i have been feeling like my hair hurts and i want to shave my head or cut off my long hair. I also feel like throwing out my clothes that feel uncomfortable to put on. Anyonr else ever have this? Read More

I am really struggling with a lot of concerning symptoms and not getting anywhere with my doctors. I am actually going to travel quite a few hours to get a second opinion in July. Starting last December I have had extremely strange symptoms. I have had my hand go numb for up to four hours at a time, tingling… Read More

“Those who cannot change their minds cannot change anything.”-George Bernard Shaw I've been consuming a lot of self improvement advice (and hopefully changing for the better). I also have MS and even though I find many workarounds to getting things done I just finished reading an article based around the quote… Read More

There is one question to ask yourself: If you dont try, how will you feel? Will you regret missing the opportunity? Whether or not you achieve your goal of getting the phd is secondary. It is not a matter of succeeding, it is a matter of giving it a shot, using your best effort, giving it a go. So you will not… Read More

Hi all, I'm Jez from the UK. I was diagnosed with mild MS in 2002 (i probably should have joined here sooner) and thankfully since 2002 it's been benign with just a limp and fatigue and a few minor symptoms and no progression or change.  But lately I've been getting spasms in my foot (no change in walking or… Read More

Hello everyone, I recently had an MRI of the spine and for the first time my legs were twitching a lot and my body heating up while I was in the MRI machine. Has this ever happened to anyone? I've had MRIs before but this had never happened to me before. It was kind of scary. Read More