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Frustration *

I am so frustrated while waiting for a diagnosis. I know I have MS, I have all of the symptoms and truly feel it. This has been going on for over 10 years. When I was diagnosed with fibromyalgia I just accepted it and lived my life. Now 10 years later and 100 more complaints, I am patiently waiting through… Read More

Problems? Chapters 2 Weird Happenings *

This was the day when I realized something was wrong with me! I could not see! Go forward and find out why, if you will, and will share this experience with you and then you will no, how much strength I truly do have. 😱😱😱😱I awoke this morning but sleep still had me in its clutches. I began to arouse again… Read More

Problems? Chapter 1 *

My lips were the first thing to start swelling and then I began to start itching. I screamed loudly to husband. "John. I can't breath." I was calling out to him frantically, screaming more loudly this time, "John," screaming again, this time he was answering and when he heard me, he already knew what was wrong!… Read More


Hello to All, I am a new member to the MS Connection Discusstion group. Currently, I am without a neurologist. I was a patient at a large hospital based MS Clinic. Ovverall, I did not have a good experience. I am looking for a neurologist/small practice that has experience with MS patients, preferably nearer… Read More

Gastric Bypass*

I'm thinking about having the Gastric bypass surgery for weight loss. I spoke with my Neurologist about it last and he shot it down quickly. I have the feeling that he was giving me his personal opinion rather than his professional opinion. My other Physicians feels it would be a great idea. I have yet to… Read More


Hello everyone. I was newly diagnosed this last Dec. I have been trying to find things to do around where I live to just be around people who have MS or know someone with it but it is harder than I thought. I do know that a MS Bike 150 is happening but realistically I won't be ready. I haven't been on a bike in… Read More

Health *

  I just completed my 3rd week of going to the gym 4x/wk. I'm stunned at how much better I'm feeling in such a short time. I'm pushing ahead further and this is where I could use some input.   I started looking at the Whole30 program. For those of you unfamiliar, it's a plan that restricts what you eat to… Read More

Starting new meds*

I was on Copaxone until January of last year (it failed and I had a relapse). But right after my relapse I got pregnant. So I stopped treatment while pregnant. I had my first MRI since giving birth and I have 1 new lesion. My doctor wants me to start Tecfidera. I received my meds today and I am absolutely… Read More

Fatigue & lassitude*

Read this great article MS fatigue Click for Article. I myself suffer bad fatigue, of course as do 80% of MS patients according to the article. The Fatigue & lassitude section of the article caught my eye the most as it describes my MS fatigue right down to the very last detail. Was curious how many others on… Read More

MS Headaches *

I seem to just about always have some kind of headache. Before I was diagnosed with MS (in late July of 2017), I wrote off my headaches to allergies, stress or depression. I read an interesting article about MS and headaches I thought others might care to read. I like how the article specifies types of… Read More

The Struggle Is Real*

I read an interesting article recently posted by a gentleman with MS (on another MS site I am on) called Click here to read article. I felt like I had written this article myself it was so spot on with how I am almost every day. Here's my response I posted to the article: I completely… Read More


caution: only for those who want to go there Part One ​After being on 100mg of Zoloft for years, I told the gp I wanted to stop, he said to cut the dose in half for a week then stop it all together. [at the time I did not know that zoloft was one of those drugs that you needed to wean off slowly]. When my… Read More

The Sound Of Silence?*

Just read this article titled Tinnitus and MS: An Annoying combination. To read it,  Click HERE for article. There are quite a few MS symptoms I get daily and one of those is Tinnitus. I get the most common type as explained in the article, Subjective Tinnitus: Head or ear noises that are heard only by the… Read More

stabbing pain in the ear

Has any one experienced a stabbing pain in the ear.  This pain doesn't last long just comes and goes at times.  I am noticing different things happening lately and I have been dealing with MS for just about 20 years now. Read More

Food *

  I have been having a lot of trouble with appetite. Nothing is appealing. I make myself eat because I know I have to, but it's a chore. Anyone else have this problem? Read More

massage therapy*

Ok fellow MS people... who has used massage therapy and does it seem to help? The weather is chaging back to down right cold here in Indiana and I am so stiff and my whole body hurts. I was thinking about doing a massage but I am a little scared. Any thoughts?? Read More