Search Discussions

Main Content

General Discussion

Assistance needed*

Hi my name is John, I've been volunteering at bike MS in Oregon for a couple years. Last year I was very inspired by those that were riding with MS. I said last year I'm not going to make any more excuses for myself. I also want to ride with MS next year. So because of a bike company called different spokes was… Read More

help *

woke up this am and my legs are acting weird. i start walking fine then in about a minute or so....they like freeze up. get really stiff like. help. Read More

Intense Itch

I don't see many posts about itching.  Besides fatigue, my worst syptom is itching.  It is localized (foot) and debilitating.  My neuro likens it to pain because it is so intense.  When I try to sleep it will begin; I have to get up and walk for a while (which is difficult when so sleepy).   I've seen four docs… Read More

girlfriend's and wives *

Hi am Mel and I had MS for almost eighteen years now and I been to hell and back and all over again. I lost both my wives because of MS . However when you fight your way back to a point where your looking good on the outside and your still sick on the inside and you met someone and your illness becomes… Read More

Medical Coding Errors*

Has anyone else experienced medical coding errors.  I am in the midst of trying to correct an error made by a coder that resulted in an false diagnosis. The medication I take for fatigue requires 6mo visits to the dr.  After a May 2017 visit, I noticed a document in my records that indicated an outpatient… Read More

MS and Prostate Cancer *

My husband was recently diagnosed with aggressive prostate cancer.  Has anyone dealt with this situation previously?  Interested in treatment options. The cancer is aggressive and treatment options offered seem to really have a negative effect on MS and quality of life Read More

Do I really need a wheelchair in Hawaii? *

Hi, my mom is taking my sister, brother and myself to Hawaii. My mom has dementia and wants to go while she can. My sister is renting a wheelchair for my mom and myself and I don't feel so good about that. She says we will be able to see twice as much as I also have arthritis in my feet and tend to walk slow… Read More

Anyone that can relate to me?*

I am 31 years old and I was diagnosed 7 and a half years ago when I was 23.  I do know several people with MS but they are all parents of my friends in their mid 50's.  While they are great to talk to, they tend to take the advice route and tell me to keep my head up and things like that, because I am like a… Read More

My new life with MS*

Hi all, I have been living with MS now since January 2017, officially diagnosed on 2/13/17.  So far from my experience I can say every day is different.  There are good days, somewhat ok days, and then some days that I am so tired I just want to lay in bed all day. But from my short experience with living with… Read More

smoking? *

So I'm coming up on a year since my diagnosis and have been doing great. As a 24 year old I had been smoking since 11th grade probably around 2010, never a heavy smoker a black and mild cigar or three a month. Ive come this far without smoking and dont plan on going back I was just wondering how smoking affects… Read More

Having children *

Hi every one, my name is Tara and I am semi new to this side of the MS aspects. I could Google a million things that are on my mind, but I just don't think it is as personable as Speaking and listening to people that are actually living with the disease or dealing with their loved ones whom have it. So here it… Read More

Worst Neuro/GP visit pre-diagnosis*

What was your worst Dr visit pre-DX? So here's my short version - Had multiple symptoms and figured stress and/or lack of good sleep. Over a 6 month span I experienced heavy legs, blurred vision, frequent dizzy spells, eye pain, sudden need to urinate, loss of night vision, loss of hand dexterity, food not… Read More

Today I Feel Lucky to Have MS...*

...some days I don't, but today I feel like the luckiest person to have MS.  Since my DX almost a year ago, I have a different outlook on life,  I have a whole new tolerance for other people's way of life and have stopped judging people so much.  I'll admit before MS I probably wasn't the most patient or… Read More

No lesions?*

Hi everyone. I'm new here, I don't have a diagnosis yet, but MS is a possibility. I've done some research of my own and I've read that 1 in 20 people diagnosed with MS do not have lesions on their brain. So my question is....any of you out there that were diagnosed without lesions???? I have optic nerve damage… Read More