I have recently seen my MS Neurologist after a 2nd episode of severe itching where I wanted to rip my skin off.
The Neurologist started as he has no other patients with MS Pruitius or Paroxymal MS Itching nor does he know of any MS Neurologists in the country who have patients with as they all trained under him.
i have printed off dozens of articles including those written in the Ameeican Journal of Medicine he read them but he needs more than one patient with the severe itching.
Can any MS Neurologists comment on this or any MS patients who are experiencing this provide me the name and contact information of your Neurologist so I can connect the two for information sharing.
I have one by one started to contact MS Neurologists myself in North America but it's a Long process hoping to find one with a patient who has severe itching.
I am so glad I read this! I have had extreme itching for the past 4 months and no one has been able to tell me what is causing it. My MS doctor said itching wasn't typically related to MS, but it isn't from anything else and it is unbareable! Please let me know if you have any luck with this, and I'll ask my doctor and research as well! I feel so relieved to know that this is the cause because I have been going crazy with allergists and doctors trying to figure out what's causing it! Thank you!
I'm not a neurologist but did find this on Medline...
I don't know of a neurologist, but I can share what has helped me with eczema (and itching related to MS).
moisturizer after every shower
moisture socks every night to help my feet (the worst of it)
gluten free/dairy free diet
I also had the feeling that I wanted to rip off my feet it itched/hurt so bad. I tried steroid treatments and other medications from the doctor to no avail. I think the meds made it worse. I became strict about the moistureizer and modifying my diet. So far, so good.
Everyone is different so who knows what will work for you. Good luck!
i have been causeing sore for all most 4 year one of thing that sent me to dr to be test for ms that and loseing fill hands and other part off and on hand steel no fill after being on ms pill for 3 year any i know how you fill itching to where draw blood have sore my ms dr blow me off when tried to talk to her new to this page so do not know if can post photo if so could see some sore became scares she said the 1 pill but it may me forget my birthday they gave to me for my rsd when was18 will never take sure there are other pill