I'm seeking input from my fellow MSers. In sum, I've been living in my deceased parent's home these past 10 years. I'm on SSDI and have no family in the area. I have limited resources for home/appliance repairs/replacements. I'm at a loss of what to do?
I've been on SSDI since 2012, and have the Low-Income Subsidy for my Avonex therapy. The only asset I have is my deceased parent's home (that I live in). It's an older home, and at some point, things will need repaired, replaced. I don't have the resouces to to that. I don't know what help is available for MSers on SSDI?
I do know it's not as simple for me to list the house and move into a single floor apartment (folks have said take the money and run) which we know doesn't work in my case (on SSDI and Medicare). I'm at 120% of the Federal Poverty Level (too much for real assistance but too little to truly live).
My head is spinning. Don't know where to start? An attorney to find out details about a Special Needs Trust (will need a Trustee but who???) how to sell a house with limited resources? Are there any resources or help available for me? I live in Pennsylvania, 52 yo Female, divorced, SPMS, SSDI past 8 years. The house is my only asset (obtained through parents death). Older house will need repairs/work someday. Help!!!
Where do I begin? Thanks, in advance, for your input!
This is Steve with the National MS Society.
I'm glad you found our site! I have included some information below for resources that may be able to assist with making needed repairs to your home:
Resources for basic home repair:
There are additional programs that may be able to help with home repairs
- A Habitat for Humanity program called Home Preservation offers home repair assistance to homeowners who are unable to maintain the outside their home because of age, disability, or family circumstance. The program offers exterior maintenance services including exterior paint and minor repair such as fixing broken windows, adding wheelchair ramps, landscaping or sidewalk repair. Repairs are strictly limited to the outside of the house. Interested persons should use the website to find their local Habitat for Humanity office & contact the local office for more information about Home Preservation efforts in their area.
Find a Local Program : Home Preservation (a Habitat for Humanity repair program)
Find a Local Affiliate : Rebuilding Together
- Rebuilding Together is the nation’s leading nonprofit organization providing critical home repairs, modifications and improvements for America’s low-income homeowners. This agency brings together volunteer labor, donated materials and private/corporate contributions to offer services to deserving homeowners at no cost. See website for a list of local affiliates. PLEASE NOTE: Services vary by affiliate. Please verify with your local Rebuilding Together which services (ex. home repairs, home modifications, etc.) are offered in your particular community.
I'd also like to encourage you to give us a call and discuss the situation with one of our MS Navigators. We'd be happy to help in any way we can. You can reach us M-F 9am--7pm ET at 1-800-344-4867 option 1.