I am very excited to be here and have the opportunity to ask you all questions.
I feel so safe and happy here that I don't need to explain myself and symptoms, that we all get a sense of each other's condition without knowing it exactly. This empathy is so precious and also very vital to us that I want to do an art project in order to raise awareness about MS in a very happy and fun way.
Yes! MS is terrible, it is debilitating, it is degenerative yare yara but it's not all evil and bad! We all know that after diagnosis our lives is never the same and has changed forever.
I also had to reinvent myself and my way of living. I revisited my habits and worked hard to have control over things I almost forgot I have control over, what I think, what I say and what I eat.
What do you appreciate about MS? Not necessarily in a bad day of MS but maybe in a less flared up day? What makes you happy? Is there anything you want everyone know about MS?
I really appreciate your thoughts.
I can appreciate how ms made me place importance on things I probably wasn't focusing on enough lately before diagnosis but did have interest in such as diet and nutrition. But more attention on things like exercise and not abusing myself by not sleeping, pushing myself way too much and having an extremely irregular schedule. So I can appreciate all those things
this is my first reply so also reaching out to different people will be nice , sharing thoughts :)
ms has given me the wisdom to not expect anything, to not expect what the day will be like, to wake each morning with no preconceived notions about what will happen or what I am able to do.
That I still know who my partner is, and what his name is, makes me happy, that I love and am loved, along with monkeys, butterflies, that I can still see the exquisite beauty of nature, hear music, and smell the aroma of roasting garlic, that I can laugh and make others laugh, and that I am not afraid to make a fool of myself for fun.
You hit on a lot of my thoughts about MS. In my profile's "My MS Story" (though the site <grrr!> doesn't format the My MS Story properly) I touched on that briefly so I'll repeat it here:
Benefits of MS: That initial MS attack was useful, however. It caused me to rethink the definition of being a man, analyze the meaning of life, and put a great deal of thought into how I was going to raise and what to teach my children if they had a father who was blind and in a wheelchair. This caused me to delve deeply into theology and eastern philosophy and in the process allowed me to jettison years of military brainwashing and indoctrination. Without MS it is highly likely that never would have happened. Though I was physically challenged by MS, mentally I became a much better human being because of this damned disease.
Like you I gained control over my eating habits. MS taking out my sense of hunger and sense of taste helped in that, but Terri Wahls' diet protocol and other MS-related diets made me rethink the purpose of food. I now maintain a normal/sane weight without even trying.
When I was working I also credit MS for giving me a sort of "I don't give a damn" attitude. I did not suffer fools well, and if disrespected I took the attitude of "life's too short for this." I knew I had a degenerative brain disease and so I'd find other work. This lead me to working quite a few fun jobs across the US and world. That might not have happened if I didn't have MS and that attitude.
Now that I'm no longer working and life has gotten "smaller" I go out of my way to find joy and a reason to be happy in trivial things. It might me as mundane as going to the gym and getting in a good workout. Or driving to see grandkids.
Or getting to the grocery store and having the energy left to wash all of the veggies and put them into the 'fridge. (Pro tip: If you buy lots of veggies (you should!) always only store cleaned/washed/ready-to-eat veggies in the 'fridge. This makes veggies into "hand food." You can grab a broccoli or hunk of celery and eat it as a snack rather than opt for some corporate-manufactured junk food. Really, having the veggies ready to eat will mean you eat more good stuff.)
But I'll trade all of those advantages for a shot that ends my MS and re-mylinates my scarred brain and spinal cord. :-)