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  • MS_Navigators
    A vision problem is often the first symptom of MS, and can certainly be frightening. Fortunately, the prognosis is good for recovery from many vision problems associated with MS. Have you experienced visual issues? Share your experiences, questions and tips below. And, visit National MS Society: Vision Problems to learn more.
  • lizzybell
    double vision is what started thr chain reaction. it only lasted for 4 hours. It came on so suddenly.while i was driving..............thankful eye doctor sent me to neuro and mri.
  • sgh500
    Early 2000's I went to an optomotrist,  I never wore glasses but I always got weird minor vision things happening when I was looking at a computer monitor, I did a lot of computer CAD work,
    My eye test was perfect, but i got computer glasses anyway, (recommended), 0.5 script, I wore them sometimes, then I bought a pair of fashion rayban sunglasses, I complained that they were out of focus, but they were perfect, the lens was a dark brown/gold type lense,this color lense enhanced my vision problems,  this was the MS at the time but I didnt know.
    Many years later I suffered depression for no reason, cognitive decline and emotional problems, then in 2006 my arm went numb, totall double vision,virtigo , tripping and falling and more, things went bad quickly.I seen a Neurologist, MRI showed I had MS, I then started beterferon injections, high dose steroids, then tysabri 2007-2015, now on Gilenya , I am JC Virus positive now and a risk for PML.  fatigue and leg weakness is a main problem for me, double vision has gone.
  • mar1558
    I've had glasses and contacts my whole life, so when I noticed my vision seemed cloudy one day I suspected I had makeup on my contact or even had them in the wrong eyes.  After switching then out and putting on new ones I realized there was something wrong with my eye. While waiting the few more days for my optometrist appointment I noticed my vision in my left eye was extremely bad. She tested me and concluded that I was at 20/200 which is legally blind. She referred me to an Ophthamologist for further testing the next day. He subsequently referred me immediately to a neurologist who prescribed IV prednisone which brought my eyesite back. I'm very happy to report that thou I have some distortion in my vision that it's come back very very well.  

    This is journey is very new to me but the more I read and research the more I realize that I've been symptomatic for many years. Tingling and numbness in my feet several years ago, numbness in my hands. Now I'm experiencing sharp piercing pain all over my body. Unfortunately my neurologist doesn't think it's from the MS, he suspects it's from B12. 
  • hopeandhealingbook
    When I had MS, from 1999 to 2001, there were several distinct periods of random double vision as well as blurred vision to near blindness for me.  Many times, I just wept at the thought of future blindness and of not being able to see my beautiful young daughters as they grew up. Fortunately, I was completely healed of all of my symptoms by 2001 and have lived a completely healthy life since then.  I wish you and your loved ones the very best as you work toward recovery from the terrible health complications and despair of MS.  You can see the details of my story at hopeandhealingbook.com.  
    Yours in Faith and Health,
    Debra
  • cjtmn
    My first two undiagnosed episodes were vision-related. In 2008 - and then again in 2014 - I experienced a few weeks of Cranial VIth Nerve Palsy. The CN-VIth nerve controls the side to side movement of your eyes. With a palsy, one of the nerves stops signaling to work; so, one of my eyes wouldn't move all the way left or right, which created a double vision problem.

    In the first instance, my brain MRI came back clean & everything cleared in about 3 weeks time.

    In the second instance, my brain MRI came back clean but my cervical spine showed an old lesion and my thoracic spine showed some slight signaling of  inflammation. Neither were related to my eyes and while the double vision cleared in about 3 weeks again, I dealt with dizziness & oscillopsia for several months. I declined a lumbar puncture since the spine results and my eyes appeared completely unrelated. I should note that my optic nerve has appeared healthy in every exam.

    September 2015 brought about an entirely new set of symptoms - and in hindsight, my MS specialist then felt it was possible there was a small lesion on my brainstem that was just really difficult to detect. Of course we won't know for certain, but there is a feeling that all 3 episodes could be related. I was Dx'd with RRMS in November 2015.

    Cheryl
  • klg-123
    I had a bout of double vision - 6th nerve palsy as well. This lasted for 2 weeks. The opthamologist sent me for an MRI to see if there was something causing it. When the results came back he was concerned and sent me to a neurologist right away. The neurologist said it was most likely RRMS. More tests - additional MRIs and a spinal tap - comfirmed it. I was formally diagnosed in July 2015. A specialist agreed, but said it was CIS due to the fact that there was only 1 episode. Either way, I am on Tecfidera now and have not had another relapse and no significant symptoms. Luckily the opthamologist was thorough.
  • cjtmn
    klg-123,
    I haven't met too many who have gone through 6th nerve palsy, too! I am so glad you are on meds early. Hopefully you will have many years of good health ahead! I went 7 years in between my 1st and 2nd episodes :)

    Cheryl
  • Sunbeem
    For over 20 years I've experienced double vision. When I resumed playing the piano and violin about 12 years ago,  my progressive lens were not effective for reading either piano or violin music. Consequently,  I had special prescription glasses for each instrument.     A few years ago,  the cataract in my left eye rapidly grew. The opthamologist who performed both cataract surgeries felt the unusually rapid growth in the left eye was the result of  1  3 - day IV steroid treatment for an MS relapse. (Other relapses had been treated with prednisone titration or Acthar Gel.)  When the opthamologist was determining my reading glasses prescription after surgery, she discovered that I needed a prism in my right lens. This particular opthamologist loves challenging refractions. I've found most opthamologists do not like to do refractions. She has incredible patience. To determine the correct refraction for my violin glasses, I bring in an assortment of music representative of the various sizes of type used to print music. Her assistant holds the music at the same height as a stand and at the correct distance (a meter or about 39 inches away).   Both my regular and my cataract opthamologists had observed scarring on my optic nerve indicating at least 1 episode of optic neuritis. I have also developed low vision. The vision in my right has been dimishing to the point that I have to occlude the vision when engaging in near point activities and when reading violin music even after I enlarge it. Twice extensive visual diagnostic testing using the most advanced technology available indicated no retinal causes for my loss of vision. Again extensive neurological testing was negative for MS related blindness. At this point it was felt that perhaps a neuro opthamologist might be able to provide insight. Unfortunately, the neuro opthamologist did not address the issue. 
  • braidgebrown
    Last year (2014) I had optic neurotics please excuse me if I spelled that but I thought it was just a phase I waited for 2 months to tell anyone by that time I was completely blind in my left eye I went to the doctor that when I found out I had ms my eye sight comes and goes some times it's doubled to 
     
  • braidgebrown
    Last year (2014) I had optic neurotics please excuse me if I spelled that but I thought it was just a phase I waited for 2 months to tell anyone by that time I was completely blind in my left eye I went to the doctor that when I found out I had ms my eye sight comes and goes some times it's doubled to 
  • jcirceo
    My first symptom was distorted vision in 2008.  Despite a thorough work-up, I was not diagnosed until the second episode of what I know now was optic neuritis.  Looking back, there were earlier signs that I now believe were related -- slurred speech, dizziness, clumsiness.  I could only really sum it up to my doctor that something just wasn't right. This was June of 2013..These symptoms led to a hypothyroid diagnosis, but the vision issues started a couple of months after my thyroid counts were regulated. In August the sme year, my vision began to worsen over the course of a day until I couldn't look to the right without experiencing dizziness.  The weeks leading up to this day frequently included what I thought was a mild migraine with soreness when my eyes moved. The lack of an explanation to the earlier episode caused me to be extremely persisten in obtaining an appointment with my PCP. I was quickly seen by my ophthalmologist who suspected MS. My acuity was fine but my visual field was reduced. He was able to work me in to see a neuro-opthalmologist the same afternoon.  An MRI of my brain and optic nerves showed a lesion and inflammation of the optic nerve. The first neurologist to assess me after this work-up told me I was "lucky" as many others had much worse vision and offered no treatment or answers. I realize I am lucky compared to many others with this diagnosis but was not willing to accept this response.  My neuro-opthalmologist gave me a second referral (who is now my current neurologist.) He suggested a spinal tap which indicated MS with an elevated IgG index and several oligoclonal bands. We started Copaxone shortly after and vitamin D.  

    It"s been over 2 years, and no significant relapses have occurred. I'm diligent in taking my medicine as prescribed and recognize that things start to go sideways when I let myself get too run down. I'm now pretty protective of my time on weekends to rest as I push myself hard at work during the week. Regular checkups (6 months) with my neurologist are also important. When I start having daily headaches that affect my eyes, I slow down a bit more. A close friend at work also keeps me in check by telling me when I start to look tired. It's frightening when you realize the same vision issues are starting again, but knowing what to expect and understanding my vision will improve over a few weeks time helps.  
     
  • funirish1968
    I have a new issue with my sight. I've had Optic Neuritis. I now have a spot in my vision that is like when i have a drop of water on my glasses. It's a circular area where everything within it is distorted.
  • deedeemac
    What about poor prognosis? I've had bilateral optic neuritis that has left me legally blind due to MS. It's been 2 years since I lost most of my sight. I can't drive, can't work. I'm 35, no kids, no career and live an isolated life as a result if this disability. I know my case is rare, I've seen neurologists, neuro-ophthalmologists, and ophthalmologists. All agree damage is likely done.  Has anyone regained sight after more than 2 years?
  • pattys86
    So far I have only experienced 1 vision problem.  I lost partial vision in my art eye for a month or more.  This was in 2007.  I went to an ophthalmologist and MS was never mentioned.  I finally received a diagnosis in 2012.  I saw several practitioners.  FINALLY, a family practice physician sent me to a neurologist- after a full neurological exam and an MRI (with and without contrast), I was finally diagnosed in 2012.  So I am sure I have had MS for years, as I look back on my life.  At first I was grateful for the diagnosis, I thought "ok, this is something I can live with" - boy, how little I knew. Living with this has turned out to be one of the biggest challenges that I have ever faced.  I don't know what tomorrow will be like.... No day or feeling is predictable.   Everyday I must learn or feel something new.
  • mrsprater83
    I had vision loss in my right eye for a couple of weeks before I was diagnosed. I ignored it until it got to the point where everything was dark in my right eye. I went to the ER, got a CT scan. The Dr then transfered me to a bigger hospital. I had my MRI at 7 am the next day and by 1 in the afternoon the neurologist came in and told me that I had MS. They told me that my sight would probably come back but I went to the eye Dr a couple weeks ago and they told me it is permanent. I started out with optic neuritis and now I have optic atrophy.
  • mrsprater83
    I had vision loss in my right eye for a couple of weeks before I was diagnosed. I ignored it until it got to the point where everything was dark in my right eye. I went to the ER, got a CT scan. The Dr then transfered me to a bigger hospital. I had my MRI at 7 am the next day and by 1 in the afternoon the neurologist came in and told me that I had MS. They told me that my sight would probably come back but I went to the eye Dr a couple weeks ago and they told me it is permanent. I started out with optic neuritis and now I have optic atrophy.
  • seclorum
    First symptom was emotiona but the second was vision related.

    All of the sudden my eyes were crossing and I had double vision out the waazoo.

    First ER described it as some kind of palsy but other than give me a referal to a Nero I couldnt see it cleared up within a few weeks.

    2nd instance occured 4th July 2015 and went throgh a emotional rollercoster but thankfully this was the only symptom of this attack.

    Last Nov it came back and I went downhill until I went to the ER again this past Jan. now its clearing up with treatment but its slow going.
  • hscott72
    Vision is one of my more troublesome issues and its 2 fold and is something that mostly crept up on me rather than being sudden like for many (though I did have severe vision loss when in the middle of a very bad relapse). I have been wearing corrective lenses since early childhood so it was not until after I had a steroid treatment that I realized how bad it actually is (because it completely cleared up for awhile, sadly not permanently). The first issue I have is spots in my vision. Its like having shiny rain drops on my glasses. The other mostly affects me driving and has made me reluctant to do so, I get a spaced out feeling. I think its because I'm slow to focus.

    Has anyone tried any brain training exercises for vision? I've been very successful regaining my coordination by doing very systematic excercise and training but am having trouble coming up with an approach for my eyes.
  • jiuzzolino
    In 1982 (when I was 18) I had vision pain and blurry issues and after numerous tests, catscan, and spinal tap I was diagnosed with Vogt Haradas Syndrome. It has re-occurred around 5 times and each time treated with oral steroids. Once I was told I was leagally blind in one eye until the treatment resolved it. In 2012 I started having double vision and balance issues went into the hospital and treated with iv of steroids while they did all sorts of tests then once out my nuero said oh it may be lymes then gave me antibiotics, At the end of 2013 I started having balance issues, numbness and vision issues again went to the hospital. They ran every test possible and wouldn't you know my lymes test came back negative. I was diagnosed with CSI then in 2016 with RRMS due to new lesions. Been on Copaxone since 2013 and have not had really any big issues re-occur. I think this Haradas Syndrome should be considered as well as the optic neuritis and MS.