Did you know 60 to 80% of people with MS are estimated to have a temporary worsening of their symptoms when they become overheated? How are you staying cool this summer?
I mostly stay cool by staying in the air conditioning. I even installed air conditioning in my garage so I can still work on things & do woodworking. If I go to a outdoor party I drink plenty of cold water and stay in the shade. But that usually does not last more than two hours or so. When my arms go numb and my leg starts giving out and getting uncoordinated I go back home.
I had a bad experience recently from getting over heated. It scatede and I did not understand it. I was hydrated and trying to stay cool but I was at an event that involved a lot of walking. Relaxed in the motel room the rest of the day and night. The next day it was still hot and I was still sweating but drinking plenty of water. But I ventured on anyway. Then my legs started to shake. Only I could tell it because it was on the inside. I felt like my legs were going to buckle on the next step I made. Someone took me back to the car and I came home and rested in the air conditioner room with it wide open now I am ok now, but it scared me.
I love the cold towels you can buy for around $15 at Wal-Mart or Target. I keep two in rotation, one on the back of my neck for 30 min while the other one soaks in ice water to be used next. My little Chihuahua loves them, too. Florida is so hot I do not venture outside between 8 am and 7 pm.
Amy-G wrote: I do not venture outside between 8 am and 7 pm.
Me too! Those hours are my trike-riding and yardwork times.
I'm thinking I should start buying some black leather clothing, wear black and black make-up, and become a Goth. I've already got half the habits so they'd welcome me with open arms!
I love my cooling towels, my husband got me several this summer! He also got me a vest, but I haven't used it yet.
My plan was to flee to spend the summer in far northern New England, but that plan fell through. :( So now I revel in indoor AC.
While I tolerate the heat now much better than I did in my 30s or 40s, I swear I "feel" the heat while sitting indoors with the central AC set at 75-degrees. To me it must be a combination of the humidity and/or air pressure -- something like that.
I got a cooling vest it helps me tremendously i couldn't go out without it. Polar products is the company. There are even resources to get one for free i did and it is great. My family purchased a second one so I can wash the other if you have a heat intolerance get a vest
Air conditioner helps a lot, until it gets too cold. Then I keep it on with the patio door open. My body temperature is normally off...and I'm sensitive to extreme hot/cold, humidity, and barometric changes in weather soooo...It's tricky to find the right temp as my body temp diregulation happens. When I have enough energy perhaps go to the pool for a quick swim. The summer is a beautiful season but my body does not do well in it. Come to think of it, the winter is another issue. Spring and early autumn are much more friendly.
Not really. I have a window ac in my bedroom and a water cooler for the rest of the house. But today's pretty bad was in the heat to much yesterday and my fingers are acting up this time even more. Not to mention the rest of my body being affected.
I keep the ac at 72 and only go out before noon. By 12 no matter what I do nerve fiber fatigue kicks in so I usually nap with my 2 youngest for 1-2 hours
I start my day 1 hr before sunset "go out of my house " in summer months
becouse even in my car and the AC on I feel fatiged in summer and all my relapses happend in summer months "all of them" is it seasonal or the heat or the sun exposers we don't know
summer in my area around 38 in the night and 50 or more in daytime !
I was thinking about traveling for 3 months to cold place maybe next summer I will
I have a couple of fans that I can put around my neck. Also, drink cold water all day by using ice cubes that can be frozen. I carry a bag full of ice packs that I used as needed.
I just stay in the air conditioning!
I keep my air conditioning set to 70. I keep it on an energy saver while I'm at work and then full-time while I'm home. If I get too chilly, I just throw on a long-sleeve shirt. I'm a lot more careful about the time I spend outside now. Early evenings are my favorites.