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  • achill
    Hey everyone, I'm new to this so please bear with me. I'm currently in the hospital I've had vertigo for 10 days and have been diagnosed with MS a few days ago. I just really want to know if the vertigo will go away I'm ready to be back home and back to normal. Has anybody had any experience with this? I'm really hoping for some positive vibes. 
  • maria1
    Just when you think it will never go away, it goes away.
    Just when you think nothing nice will happen, you get a wonderful surprise.
    Just when you think you got it handled, a new something appears.

    Expecting normal, expecting everything to be the same and expecting everything will look the same will leave us with disappointment, not because it is all different but because we are different and what we see will never look the same again. 

    We all now have a different point of view even though we are looking through the same eyes.Rest, Relax, take it easy or hurry up and wait, time allows our brain to make sense of the unknown, it is working even when we think they are not, those wheels are turning.

    Some things are left for the brain to figure out, and to trust that it will, to give it a push, tell it to hurry up. 

    For a distraction look for words that rhyme with dizzy, then segue on to another rhyme. Keep yourself amused and know that we have all been there and what we have learned for this time is to eat light, giggle.

     
  • richardsonv123
    Hi @achill! I have experienced vertigo before and trust me, I feel for you. It is definitely not a comfortable state to be in; however, my vertigo was eased with a few days of steroid treatment. Some people react differently to the medication, i.e. requiring more doses than others, but if your doctor recommends this as a possible solution, I would give it a try. I hope that your vertigo subsides soon, and keep us updated! 
  • beaurylancambria
    I have had MS for almost 4years. I have had vertigo once. It was awful and lasted 6 weeks. There are times I get dizzy or feel "high", but that comes and goes. Maria said it very well. There is no planning or getting ahead of this disease. With that being, 95 percent of the time, I'm fine. A lot of times, things only become an issue, when you make them one. I hope you get relief soon.
  • anywhereoutofthisworld
    I was diagnosed late July of last year but due to the high amount of Ms lesions revealed to my neuro from my brain MRI & the high amount of protein 'o' bands discovered in my spinal tap results its believed that I've had Ms for sometime. Vertigo is definatley a symptom that as I recall I did experience off & on even before my diagnosis. The episodes never lasted long but one particularly scary moment happened while I was driving. It was cold & dark/rainy out and I was coming home from work after a long day. I assumed I was just tired but it was vertigo, just a flash of it & it was gone but when it happens when driving you never forget it. I didn't pull over but probably should have. No one else was on the road & I just wanted to get home as I was quite tired. I don't think vertigo, at least in my case, ever fully goes away. I haven't had any long bouts of it thankfully where I was in the hospital but I have had brief spells of it & they are definately unsettling. I feel for you, I really do. I suggest you for sure tell your neuro everytime a bout occurs no matter how fleeting it is, even keep a record of each bout. It will help you & him to monitor your Ms symptoms, perhaps do this with every symptom that you feel stands out. Especially as someone newly diagnosed, keeping a record may be most helpful. Feel free to connect with me on here if you'd like and message me directly. A support system you can depend on is what makes this site so important. You should never feel alone with Ms and that is beyond imperative.
    God hangs the greatest weights upon the smallest wires. - Francis Bacon
  • TheBillLarson
    Unfortunately no one, not even your panel of doctors, can say for sure if it will go away. As I am sure you know, how MS affects people is as individual as the people themselves. That said, I experienced a bad case of vertigo some 18 years ago which has now been identified as most likely my first episode/exacerbation that was incorrectly diagnosed as labrynthitis back then. Like someone else mentioned on their experience, mine was a good 6 weeks or so. Also much like others have said, well over 90% of the time and likely even over 95% of the time I am fine. I have instances where vertigo comes and goes but they are relatively brief and usually few and far between. 

    I've learned to expect the unexpected and be prepared to handle whatever is thrown at you. I know, easier said than done, but you really just need to figure out how to roll with the punches with whatever your MS is going to throw at you. Two + years in and I am still learning my limitations and the impact various environmental variables have on me. 
  • MS_Navigators
    Hello achill,

    Here is a link to information about vertigo from our website. I hope it is helpful.
    National MS Society: Dizziness and Vertigo

    I also want to include some information for people who have a recent diagnosis.
    • Knowledge Is Power: A 116-page guide for anyone facing a new diagnosis of MS, presented in a series of topics to help people adapt and live well with MS (includes personal stories and professional resources). nationalMSsociety.org/kip 
    • Other: A selection of brochures to help you feel more connected, supported and prepared to be an informed decision-maker and powerful self-advocate as you navigate the challenges of MS. For a complete list of brochures, visit nationalMSsociety.org/brochures
    If you would like to receive any of this information in the mail or have any other questions or concerns, call or email an MS Navigator (1-800-344-4867; ContactUsNMSS@nmss.org). We are here to support you!

    Best,
    MS Navigator Stephanie 
     
  • jennifer_m
    Ah, sour vertigo, I know you well.  That's the interesting thing about m.s. Some symptoms linger and stay, some are literally touch and go. I had a bout with ocular neuritis for 6 weeks, then it faded away on its own. My numb feet came on about 4 years ago and have not left. I'm still new to Planet M.S. myself, going on 3 years being diagnosed. One thing I can say is you will have a "new normal." You learn new things about the disease and yourself, you'll learn how to live with it YOUR WAY. Family and friends will mean well, but you are the one living with the disease so you call the shots on how it's treated and how you live your life with it
    You're going to be okay.