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  • mkaymkaymkay
    I have extreme fatigue, get exhausted climbing a few stairs, numbness and tingling have spread to my arms and legs. I am ok with the symptoms as long as I am able to function properly, but I have very low energy. I want to stop being exhausted all the time, I want to be energetic and be able to do the things I would do before and more. I feel like it is getting worse day by day. My MS specialist said symptoms can last a year and we will be talking about treatment next week. Sometimes, I cant get out of bed, and other times when I do, I feel like the floor is full of needless. It feels like I'm in someone else's body, it is a weird experience. I am a young mother, a wife, and a student so energy is crucial for me. Right now, I am taking B-Complex vitamins (Kirkland), Daily D3 4000 IU drops (Carlson Company), Turmeric Curcumin pills (Me first living company), and Alpha-Lipoic Acid 600 (Doctor's Best company). I will be taking very important classes this summer crucial for my degree, I had signed up for it before my diagnosis. And I do not want to be tired, sleepy or have trouble focusing in class or doing my homework. I also want to join a gym and work out at least 3 days per week but I don't know how I'll be able to do anything there when my feet and hands are so sore and painful. you know after a burn, you have numbness in the burned area? That sensation is all over my hands, especially my fingertips which makes mostly everything very uncomfortable. 

    How do you deal with your symptoms?
    What vitamins/supplements do you take?
    What do you recommend for fatigue or energy boost? 
    Have you tried any of these: B-Complex vitamins, Daily D3 4000 IU drops, Turmeric Curcumin pills, and Alpha-Lipoic Acid 600. What were your experiences with any of them?  
    I read that you will see results in about 6 weeks of taking supplements and it is only my fourth week. 
    How do you boost your energy? My appetite has decreased a lot, and I am never in the mood to eat, especially in the mornings to make a healthy breakfast to give me fuel. 
    Thank you in advance.
  • maria1
    Try potassium for the fatigue, it has helped me. I am using Amazing Cream which is hemp oil based for topical use on my arms and hands. I also take the other stuff you take but notice the potassium has changed me besides I take hemp oil gummy bears and glucosamine condroitin for my knees. 

    The hemp oil and the potassium has improved my waking hours.
  • lveglatte
    I think your supplements sound good. For breakfast, you can try making yourself a smoothie...yogurt, a banana, strawberries, almond milk, a scoop of protein powder, a sprinkle of cinnamon, a little honey, whatever you like and whatever fruits are in season. I know it's hard to eat in the morning.  Drinking something may be easier. This should give you fuel and a good start to your day.  Exercise is good for energy too (a moderate amount, of course), and a healthy diet. I was diagnosed in 1985 so I know how important it is to keep your energy up and stay focused. Oh, and an occasional Ensure doesn't hurt either (good to keep in the house). I think with a healthy lifestyle and a good attitude, you will be able to handle this!!
  • MS_Navigators
    Hello! I'm sorry to hear you are experiencing these symptoms. You may find the information located on these links helpful:


    Vitamins, Minerals & Herbs

    Please call 1-800-344-4867 to speak to an MS Navigator Monday through Friday, 7am-5pm MT if you need further information. Take care!

    Warm Regards,
    MS Navigator Abigail
  • TheBillLarson
    I tend to deal with symptoms as they come. Generally I can power through (more like tolerate) most of them; having a high tolerance for pain helps. I'm also not one to vocalize how I am feeling unless I am feeling horrible. I have two exclusions to this though: fatigue and extreme temperatures, particularly heat and humidity. Heat sucks, but when you combine it with humidity I feel like  dementor from Harry Potter is sucking the life out of me. My first solution is air conditioning, but if that isn't readily available I search for the coolest part of the house, turn on a fan, set up camp and lay low. I haven't looked into cooling devices but I am thinking I might do so soon.

    As for supplements, my D count was quite low - 35 when "normal" is 50 - 70 and my neuro would rather see me 60 - 80. I started with 5000IU of D3 which only bumped me up to 40 so I bumped up to 10,000IU. We will see how that goes. Otherwise specific to MS my only other supplements is B12 which a friend who has MS recommended. My witching hour is around 2:30 pm - that's when fatigue hits like a run away freight train. My neuro prescribed Amantadine which soometimes helps. Taking the B12 supplement along with the Amantadine seems to be working fairly well.

    There are all sorts of recommended things for MS regarding supplements and diet, and a fair portion of them don't really have the scientific evidence to back them up. A lot of it is try it to see if it works for you. So far I have only tried those supplements. I initially was big into diet and looking at the Swank diet. I made a number of changes to my diet based on Swank, but never did follow the diet strictly. Most of the changes were just changes most doctors recommend for their patients anyway, e.g. reducing red meats, etc. 

    I don't really buy when I read things that say that you will feel better or see results ini X number of weeks, because MS is as individual as the individuals that have MS. What works for you might not work for me, and vice versa. A buddy of mine that has been on Tysabri for 5 years told me that when he started Tysabri he was in a wheel chair. 10 days later he was walking with the assistance of a cane. I'll admit I do feel better in many ways but nothing like going from a wheel chair to walking with a cane in 10 days. Not saying it is a bad medicine or not the one for me, just that my response to the medicine has been different than that of my buddy.

    As for boosting energy, you have to see what works for you. I try to limit myself to about 16 ounces of coffee a day, primarily consumed prior to lunch. Maybe that is why my witching hour is around 2:30. I wouldn't say I do anything to boost energy per se, but the Amandatine and B12 help with fatigue (for the most part). I tend to sleep quite well, but I am also one that can sleep just about anywhere, including in a school bus that is driving and I am sitting in the seat right over the rear wheels. I also have a soon to be 1st grader so by the end of his day (meaning when he goes to bed) I'm pretty much expired myself. I can usually go for another 90 - 120 minutes before I have to crash myself.