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  • OffBalance
    At 65 I was diagnosed with MS.  After having the same vision issue 20 years after the first occurance I was sent for an MRI.  Hey, I thought it could be a brain tumor.  My physician sent me for an MRI on the recommendation of my opthamologist.  Came back to my physician and she told me that she felt I had MS.  Off to the neurologist for further MRI (C spine - i think) and he said - Yup, I have MS.  Was I upset - NO, was I frightened - NO, was I depressed - NO, was I releaved - YES!   

    For years I had so many symptoms that could not be explained except to say - You know if you lost 50 pounds this could be corrected.  My symptoms ranged from bowel issues for years, numbness in my feet and legs, falling due to balance issues, depression off and on for 15 years.  No it was not my obesity - Darn, I have MS.  Thank you.

    So at 65 I had an answer to many questions.  

    I was diagnosed in August 2011; started the internet research at once and went on Copaxone in October.  

    Am I the older person here to be diagnosed?
  • deefrom_jersey
    I was 47 when dx'ed 48 now and what a difference a year makes ...
  • sla1000
    good or bad?
     
  • msfish
    I am 47 and found out the beginning of the year. I too was relieved that it was not cancer of the brain.  But now after I have to do freaking shots 3 times a week. IM beginning to think would I rather have had cancer.

    I try to stay normal as I can be,  but be real LIFE HAS Changed.

    some times I get down but mainly just trust in the Lord that he is going to look after me. Now I am just hoping that i can stay healthy and let my little 2 month old grand daughter get to know me.

    And I say I think I can , I think I can,
  • alexan613

    you can't be serious that you possibly would rather have had cancer. :(  i am now 49 years old and was diagnosed when i was blinded (for 6 months) and was 26 years old. i never over all of those years wished i would have had cancer instead, because people die when they have cancer. my husband had cancer at 1 year old and lost an eye to cancer. he has to still check for cancers every year at 41 years old. please do not think you would have rather have had cancer. i have had MS for about 23 years now. if i had had cancer, i may not have had those 23 years. i am sort of glad i was diagnosed with MS at a young age. it has made me a much stronger person than if i had had nothing all of my life. i think i would then be 49 and scared to have anything wrong. instead i have learned that MS hasn't killed me and i've lived a good life with MS, even when some things have gone wrong. I guess I can't understand your comment. What is it about MS, so far, that makes you wish you would have rather had cancer? I just don't get it. I have been through so many attacks of MS and I don't ever wish I would have had cancer instead. Can you please explain. Maybe I misunderstood you.

  • mstiffsc

    Oddly enough, because of my MS and the constant MRI I have, the doctors found a meningioma on my frontal lobe. I was 28 when I was diagnosed, and 9 years later they found the tumor.

    I had gamma knife surgery in 2012, and now because the tumor has not shrunk and disappeared as planned I have to have MRIs twice a year....

    If you cannot handle the shots, perhaps you should ask about the new oral medications. They are fabulous. My MS lesions have been stable for two years, and I have had no flares either even though I have had some of the most stressful times of my life...

  • arlenetiger
    I was diagnosed with MS in 2000 at the age of 40. I had just graduated from law school (my life-long dream) and passed the early bar exam.  I didn't let MS rule my life and practiced family law with an emphasis on child custody.  Of course my neurologist told me that family law was the worst field for me to practice as it was high stress.  I practiced until June of 2015, when my secondary progressive MS caused me to fall in the courtroom and my cognitive skills were impaired.

    However, the most difficult for me was when my oldest daughter was diagnosed with MS at the age of 30.  I lived in El Paso Texas fromm the age of 5 until 35.  My children were also born in El Paso.  A cluster study was done in El Paso years ago, but we never lived near the area studied.
  • Priscilla1992
    msfish wrote: I am 47 and found out the beginning of the year. I too was relieved that it was not cancer of the brain.  But now after I have to do freaking shots 3 times a week. IM beginning to think would I rather have had cancer.

    I try to stay normal as I can be,  but be real LIFE HAS Changed.

    some times I get down but mainly just trust in the Lord that he is going to look after me. Now I am just hoping that i can stay healthy and let my little 2 month old grand daughter get to know me.

    And I say I think I can , I think I can,

     
  • Priscilla1992
    msfish wrote: I am 47 and found out the beginning of the year. I too was relieved that it was not cancer of the brain.  But now after I have to do freaking shots 3 times a week. IM beginning to think would I rather have had cancer.

    I try to stay normal as I can be,  but be real LIFE HAS Changed.

    some times I get down but mainly just trust in the Lord that he is going to look after me. Now I am just hoping that i can stay healthy and let my little 2 month old grand daughter get to know me.

    And I say I think I can , I think I can,

     
  • stookey5757
    Free Copaxone for anybody who wants it they sent me one by mistake and won't take it back
  • Excadet
    I completely understand why you wondered if cancer was better! I hear about people who beat cancer but not MS. Now I realize that cancer, even when "cured" can still leave people with lifelong problems. But at the time, my mom had been struggling with MS since my freshman year in college and it was no picnic. There were still no treatments when I was Dx. People should not be judgmental; MS is a *****. 
  • jenc
    I was diagnosed at 45 yrs after not being able to work anymore (no matter what my "attitude" was!!!) and having no balance, almost being in a wheelchair from weakness, in constant pain, bad bladder and bowel function, etc etc...I can see why you said what you said.  I have suffered every day constantly for 4 and a half years, and I don't understand these people who do well with MS saying we can control it!  We can't help the damage our disease is causing.  Take care and I am on your side❤❤❤❤
  • dcyrdomiko1
     Hi, I wanted to reply to a post you left me on my remarks some where on here, I’m still trying to figure out how to use this. 😂 after my diagnosis in 2016, it was suspected in 2003. Now January 2016 I was introduced to copaxone worked great....fog was completely gone. July same year ampyra introduced as well as definitely MS. 1 month after that these bumps we get from MS apparently was now diagnosed with melanoma cancer. Upon these two devastating diagnoses. July 2015 lost my 59 yr old step dad, that March lost my mom suddenly. 2016 July, lost my childhood best friends boyfriend. 2 days later lost my cousin to cancer whom was my dad figure in my life. June 2017, lost 1 of my dogs who helped me walk, June 9th 2017. June 9th 2018 same day as last yr, lost my last dog, my companion. Of forgot February 2018 lost my sister in law suddenly as well. Now not once have I been able to even begin to comprehend MS and the cancer surgeries. August 2018, my care taker, my daughter moved 2300 miles away to start med school leaving me home alone. Never in my life have I ever been alone and now trying to cope with all these losses plus MS relapse one right after another. Oh and the best part of all of this I lost a lot of friends bc of this disease. This isn’t about my losses for 1. So please don’t take it this way, im trying to make a point here. I’m a very spiritual person and know God gives us what we can handle in life. This is just way too much in such a short time. With these losses and my daughter in medical school which I’m thrilled too death about has kept me or my mind pretty busy coping with all of this. Relapse after relapse if this is what they are, all I know is this, nothing about MS other than being so sick for so long taking day by day and trying hard to  make it through a day without pain even a shower is a daily battle. The mind over matter, please tell me how? I truly love your attitude towards MS and looking for positivity in this but please explain to me how does one find positivities when you’re sick, can’t walk, eat, sleep, breathe let alone try and cook for yourself being in so much pain? How can you take control when you do everything possible to call your doctors repeatedly with concerns and help just to help you feel better.  Too have months of many many calls put into his office with nurses telling you oh nope this isn’t MS, go to the primary or the ER....and then every thing showing MS after countless tests, all the money spent just to rule out this, that ect, to again be sent back to the neurologist who you been calling now for 6 months even demanding a return phone call or an apt...to NO prevail. Nurses doing nothing while your poor primary doctors are the ones taking the weekly visits from you doing everything they possibly can for you when they honestly don’t know what to do. 
  • dcyrdomiko1
    I can’t even grasp mind over matters right now. How please please explain to me how this works with all of this happening in such a short time? Today I again went to the ER bc of this MS hug on 2 hours sleep, can’t breathe, walk let alone function then after a woman was screaming and complaining bc of a wait she had to endure for her granddaughter, which any fool in there mind does NOT go to an ER for a UTI is yelling profanity that just raised my blood pressure higher, chest hurting bc I was afraid she’d pull out a gun bc of her ongoings caused me to leave in hysterics collapsing in the parking lot of exhaustion. And fear of adding more problems to my existing problems not breathing. Again seeking immediate help which I would have been there for hours. No strength let alone drove myself.  When you try and try to do what’s in the best interest for your health so many road blocks. Why is this? I’m sorry to be the “Debbie downer” here but this is reality here. No one wants too hear this, if it’s not positive your ignored. Or given words let God help! God can only do so much but when you have all these resources and you ask for help, it’s not all rainbows and whatever. How is a person supposed to be happy, positive when your whole world crumbles all at once? Therapy? No definitely no! Reading books is better than therapy. It is nice having people to talk to which is a must but people also who do not have MS do not understand let alone know what to say. Doctors are the worst who practice neurological disorders who do not feel what we feel,  but you truly do need one who actually has MS to better understand.  With all of this information giving to you which I truly respect you for your attitude please tell me how and where to start when I have and are doing everything possible to help myself cope with this.  Some times things that were just written need to be. This certainly is not easy for most. Me and I’m a pretty strong person. 
  • thughes73
    I spoke to a physical therapist.  Cancer you can possibly go into remission...ms has no remission...why are they working on more ms drugs to all do the same? Id there someone working  on a drug to maybe put ms in remission??  I have just started the blog life and am trying to get into the research of ms
  • clr1462
    I totally understand.  I was 47 when diagnosed, February 2017.  Every day is a struggle.   I don't have much of a support system.  Relying on the Lord is the one thing that always helps.
  • lauried
    I have been monitored for MS since 2005 when a few small lesions showed without very many symptoms. Diagnosis was confirmed last year at age 63.  I also have Rhuematoid/Osteoarthritis, Fibromyalgia, Parathesia, Dyesthesia, Barrett's Esophagus, GERD, and Colitis, all auto-immune related.
  • warriorpoet
    I was 27 years old when I was diagnosed but think I have had it sice I was 20.I'm 45 now and my health has never been better and improving daily,Thank God!Alot of lifstyle changes made the difference.I'm winning my battle with ms but I don't truly win until we all do!I think we have to be our own advocates and each others if and when we can.    William Milligan
  • ambrocious

    Just from curiousity, had any of your doctors had you try and type of special diets? My kids and I have some weird stuff too and we're on our way to allergists and dermatologists to investigate possible reactions from different types of foods.

    My friend's mom has several different odd autoimmune problems also, and she completely changed her diet and that has nearly killed her symptoms. She even only eats wheat that comes from somewhere in Europe because it's not refined the way that the US does. 

    My neurologist says there's no concrete evidence of diet having a major contribution in any of our autoimmune stuff, but I do fully believe that something we're eating is at least partly to blame. Who knows... pesticides, intolerance, allergy, etc.?

  • g_alder
    I’m glad you had a doctor who took you seriously. I had a neurologist who dx’d me as psychosomatic (Conversion Disorder) when my arms went numb for three days, despite lesions on my MRI.