So sorry you are going through this and it does seem like to me you may be getting a bit of the run around, which from what I hear happens far too often with possible Ms diagnosis. Let me share a bit of my diagnosis story to start. My first symptoms of Ms probably started quite awhile ago but due to my dislike of doctors & hospitals and all that I found ways to write off just about all of them, which was a mistake. I was seeing my primary doctor every one to three months for a blood pressure check as mine is usually always high though controlled with medication. Finally in mid may of 2017 I awoke with a symptom I couldn't ignore. My speech was noticeably
slurred, besides slurred speech my lower right side of my jaw felt stiffer then usual & my smile was downturned. The face stiffness cleared up in about 2 weeks but the speech struggles continued into June. My mother (a retired nurse) told me when I see my doctor in early June to of course explain my symptoms, he went ahead and ordered a brain MRI. Also told me to see a neurologist, and by late July of 2017 I had my Ms diagnosis following a brain MRI with lots of Ms lesions & a spinal tap containing high amounts of Ms related protein 'o' bands and due to the high findings in both, my neurologist believes I've had Ms for quite sometime. By August of that year I had started on Tecfidera as my Ms medication & physical therapy (partly for Ms & partly for cervical spinal stenosis, discovered from my c-spine MRI that followed my brain MRI). The reason I am telling you all of this is because I am stressing to you that a proactive team of doctors who are in your corner could prevent the runaround you're currently experiencing. It doesn't have to be that way, you should see a neurologist, preferably one who specializes in Ms. My neurologist isn't an Ms specialist but he seems highly knowleagable and I feel very safe with him. As for my primary care doctor, I couldn't ask for more, he's beyond amazing. That's the type of team you should try and find for yourself. No doctors are perfect but the limbo you find yourself in right now shouldn't have to occur. Your symptoms as you describe could very well be Ms, although Ms type symptoms are also related to other illnesses such as Lymes disease (blood work is usually ordered to rule out Lymes as was in my case). I hope you find the solid answers you seek sooner as opposed to later, that type of stress you're dealing with isn't good for anyone. I wanted to leave you with a list of common Ms symptoms.
Signs and symptoms of MS can include:
Muscle weakness, stiffness or cramps
Tingling, numbness or pain in your body
Tremor (shaking) in your arms or legs
Loss of balance
Problems walking or moving your arms or legs
Fatigue (feeling tired all the time)
Bladder or bowel problems
Thinking and memory problems
Take care for now & feel free to connect with me on here & shoot me a message anytime.
Hope is being able to see that there is light despite all of the darkness. - Desmond Tutu