Discussion do any of you guys still ride motorcycles.
Posted 1 month ago

hey there guys, my name is robert welsh. i’m 29 years old and currently being treated for my first big flare up of ms at swedish medical center in denver. i don’t have a 100 percent diagnosis as of yet but should shortly. my symptoms started in my hands with numbness in ever...

Discussion re:terrified...*
Posted 1 month ago

so you've got 2 good pieces of advice: breathe, and don't panic. they're right, neither will do any good. :) and i'm all about doing good with ms and trying to lower odds for bad things happening. the 19th? i go in tomorrow the 18th for my 4th ocrevus infusion. if it's any ...

Discussion re:what ms medication has been working for you?*
Posted 1 month ago

good morning, here is an article from our website about this topic that you may find helpful: [url=https://www.nationalmssociety.org/about-the-society/news/fda-issues-warning-about-rare-worsening-of-ms-afte]fda issues warning[/url] if you have any questions, please call ...

Discussion re:excruciating pain...help, please!
Posted 1 month ago

hi. i'm sorry everyone is having so much problems with pain. i am glad, however, to know that i am not the only one. i became primary progressive a couple years ago. i don't even know when i'm having an exacerbation anymore. other ms symptoms i have, i can deal with. however, ...

Discussion re:the only one
Posted 1 month ago

beautiful maria. you really captured how scary it is when a huge change like ms comes along, all of the rush of emotions, and the resolve that people have to find in times of much chaos, most of all how lonely it can feel when dealing with a change such as ms. i really like ho...

Discussion re:what is this excruciating back pain?*
Posted 1 month ago

hi honey. did you ever find anything to help you with your back pain? my name is charity. i am a 45 year old white female with ms. i've had this crap since 1996. the pain in my neck and back is absolutely horrible! i've been on my back for 6 months! my neurologist told me that...

Discussion re:what ms medication has been working for you?
Posted 1 month ago

i need to find a new treatment and my new neurologist recommended gilenya.  after researching it there's no way i'm taking it. i was on avonex for the first three years and wanted something different because i was tired of the shots and how they made me lose a day every week. ...

Discussion re:terrified...*
Posted 1 month ago

breathe... although we can’t provide medical advice, i can tell you that most  infusion centers are pretty knowledgeable and know the proper protocols to follow. they will pre-medicate you to try to avoid significant reactions and monitor you pretty closely the first two dose...

Discussion what ms medication has been working for you?*
Posted 1 month ago

have any of you heard of the new fda warning about risk of gilenya causing severe disability after stopping the medication?  this makes choosing a treatment so much more difficult considering all the terrible side effects that all these dmds have.