Discussion re:possible ms - what to do before
Posted 2 months ago

thanks for the prompt reply. for the time being i'm taking it as easy as possible on my body and going on walks when i have the energy. i'm living with family now so i'm in a much more stable living situation. i will check in again after my initial neurology referral, also wan...

Discussion re:possible ms - what to do before
Posted 2 months ago

it takes time to get the ssd approved but you can try to get a public defender to look at your case in the meantime. took me 2 years to get a fully favorable decision, i also was able to get back pay as well for those 2 years. the waiting involves a lot of patience and your sy...

Discussion possible ms - what to do before*
Posted 2 months ago

background: in march of 2019, i started experiencing vertigo, i could no longer walk normally, and my spine started going numb in places. in the summer, i applied for disability, and they told me i might have ms. i was homeless at the time, so i couldn't get a lawyer in time t...

Discussion re:change *
Posted 2 months ago

thanks for the shout out maria ;) as for me, i am in self quarantine at the moment as i am feeling generally under the weather - runny nose, headache, sore throat,  achy all over and such so yeah it sucks but i'm not assuming it's corona because it's so easy to assume this and...

Discussion re:hair loss*
Posted 2 months ago

danielle! thank you so much for posting this.  i just found out i had rrms in september of 2019, and while tecfidera has stopped my flare, the extreme hair loss is really getting to me.  did your hair loss ever subside? or did you finally change medications? if so, which...

Discussion re:hair loss and techfidera *
Posted 2 months ago

congratulations on being able to forget! and thank you endlessly for posting the med you switched to where you are no longer experiencing hair loss. i may call my neuro and ask to switch to tysrabi. 

Discussion re:hair loss and techfidera *
Posted 2 months ago

congratulations on being able to forget! and thank you endlessly for posting the med you switched to where you are no longer experiencing hair loss. i may call my neuro and ask to switch to tysrabi. 

Discussion re:hair loss and techfidera
Posted 2 months ago

i'm with you on the hair issues and tecfidera. did you end up staying on tec? did the hair issues subside for you? i'm conflicted because like you, tec took me out of my flare, but this extreme hair loss is really stressing me.  if you stayed on tec, did you find anything th...

Discussion re:hair loss and techfidera *
Posted 2 months ago

yes! i've been losing hair like crazy! and just as you say, the frizz and weakness of my hair are in incredible amounts and it's uber stressful. i'll feel a weight at the end of my hair, look down, and see that parts of my hair have balled up together and are no longer attache...

Discussion possible ms - don't know what to do*
Posted 2 months ago

in january 2013 i began having deep burning nerve pain on the top and inside of my thighs. tight pants or cold wind would make the burning worse and especially at night or in the mornings. i have also had muscle twitching all over but mainly in my legs, and arms. brain fog wi...