Discussion change *
Posted 2 months ago

it seems that everyone is thinking about all the changes that are happening immediately, at once, here and now. all of you are very quiet or are you all shopping around for bath tissue? the rest of the world is going through the same thing and are acting civilized. it has b...

Discussion re:steroid treatment timetable? *
Posted 2 months ago

hello, this is steve with the national ms society.  i wasn't able to find exactly what you were looking for, but wanted to make sure you did have information on what research has shown regarding the management of exacerbations of ms.  the following link will take you to thi...

Discussion re:what you need to know about coronavirus (covid-19)
Posted 2 months ago

fwiw, some add'l info on ms and covid-19:   [url=https://www.youtube.com/watch?v=6sjyx46uj7i&feature=youtu.be]how will coronavirus impact people living with ms?[/url]   [url=https://www.youtube.com/watch?v=cwsj6f6r3oe]dr boster's opinion about dmts and covid-19[/u...

Discussion what you need to know about coronavirus (covid-19) *
Posted 2 months ago

  the national multiple sclerosis society is carefully monitoring coronavirus (covid-19) and is a resource for people with multiple sclerosis and their families. [url=https://www.nationalmssociety.org/what-you-need-to-know-about-coronavirus-(covid-19)]what does covid-1...

Discussion steroid treatment timetable? *
Posted 2 months ago

i've not been officially diagnosed yet, however, i have active lesions on the brain and spine and visited a neurologist two days ago. as is the case for some, my journey to ms has been a long one (first attack was 18 years ago, second started over a month ago and is still kick...

Discussion re:hair loss tecfidera*
Posted 2 months ago

thank you so much for starting this thread. i too am having extreme hair loss. only been on tec for five months, (diagnosed on friday the 13th, 2019--lucky me!). did you find that the hair loss subsided? did you switch to another medicine if not? 

Discussion re:hair loss tecfidera*
Posted 2 months ago

i feel you! did you switch to a medicine that stopped the hair loss? i've only been on tecfidera so far and this hair loss thing is getting a bit ridiculous. i'm excited to read your feedback if you found a med that does not cause this deflating side effect. 

Discussion re:hair loss tecfidera*
Posted 2 months ago

thank you for including the number. i called and received the reply, "hair loss was not reported as a side effect during clinical trials." man, the hair loss is real and i'm glad others here are sharing their identical experience. these people can make you feel crazy otherwise. 

Discussion re:hair loss tecfidera*
Posted 2 months ago

the hair loss on tec is so extreme that i'm thinking of stopping. did you switch meds? if so, did the hair loss stop on your new stuff?

Discussion re:hair loss tecfidera*
Posted 2 months ago

it was so relieving to hear that you were in the same boat. did you end up discontinuing tecfidera? if so, which medicine did you switch to? i've been on tecfidera for 5 months and the hair loss is so extreme that i'm thinking of pulling the plug. like you, i appreciate the ea...