About Me

  • Gender N/A
  • Age 47
  • Relationship Married

My Story 4 Appreciate this

My name is Jenn. I was diagnosed with MS in 2007 immediately following my first and only exacerbation of diplopia (double vision) and vertigo (room-spinning dizziness). I took Avonex for 6 months and then got pregnant with my 3rd child at the age of 36. After 35, you're considered high risk. That combined with my MS terrified my doctors. In the end, she was an exceptionally healthy baby and my easiest pregnancy. After I had her, I did not take my medications correctly. I would remember every so often and take the shot. I really hated what the shot represented. My physical health was fine, and so I was in a bit of denial. In 2014, I went in for an MRI and it showed quite a bit of progression and an active lesion which bought me a round of IVSM. My doctor suggested I try a newer drug. My choices were Aubigio, Gilenya and Tysabri. Having some interest and experience in the medical field already, I understood the risks of Tysabri, and they scared me. I asked my neuro (who I am so blessed to have - she is one awesome lady!) if I could stay on the Avonex, and I would promise to take it faithfully, which I did--to the hour! She agreed and said to come back in 4 months. It takes about 6 months for Avonex to reach full efficacy, but we would just see where I was at that point. This was May. In August I came in for my second MRI which showed "numerous new lesions." I can put that in quotes because that phrase bothered me so bad that it remains etched into my psyche. I needed to lose some weight so I cleaned up my diet. No sugar, no carbs, healthy whole foods, good fats, etc. I walked everyday and I felt better than I did in my teens. My 7-year-old daughter could not keep up with me on our walks, and she is a little ball of energy! My stamina was amazing! I had done everything right, and I was so excited about my 6-month MRI. However, I know my neuro pretty well, and the look on her face when she walked through the door told me everything I needed to know. The Avonex was not working. I had more numerous lesions and of course always an active one, for which I had to get another infusion of Solu-Medrol. I was shocked and crushed. Now what? We discussed all of the drugs, but Tysabri, of course is the most efficacious. However, my JCV titre was pretty high, and that sealed the deal for me. I like a little risk in my life, but not that much. Not with a little girl at home that needed a healthy mommy for a lot of years to come. I told her that I was going to go home and think about it. I did the only thing I knew to do... I went to church. The people there offered me a long, spirit-filled prayer, which I thought was nice, but never thought I was going to be healed. I believe wholeheartedly that God heals, but I did not have any significant talent or gift that I was using for him. What could he use me for? I did not feel like a good candidate. I know now, that this was a warped perspective, but that was my mindset at the time. I thanked them and went home. I knew vitamin D was a key to MS, and I had not looked at the studies for a while, so I thought I would see if there was anything knew going on with that. I was so desperate and scared. I felt like I had come to the end of the road and all decisions were horrible! Somewhere in my search I found a video of a respected neurologist in Brazil who had studied in the US. He was using extremely high doses (50,000 IU to 300,000 IU) of vitamin D3 to halt and even reverse progression in his patients. I was not the person that tried all the treatments and "cures," but it was hard to refute the evidence when I saw the myriad of patients who reported remission, clear MRIs, and getting their lives back. After reviewing all of the evidence, I felt, for the first time ever that this could actually be something viable. After 9 years of searching, here was a treatment that I would actually be willing to try. It was based on solid evidence. It was not some hokey treatment. It made sense. There was only one problem, he was in Brazil. I was in the states, and there were no doctors in the states that implemented this treatment. Another road block! I am not a rich person and did not have the money to fly to Brazil, but I was going to find it. I never give up. As I was working on ways to get to Brazil, someone contacted me and said, "There is a brand new doctor in the states now!" What?!!! I could not believe my ears. Suddenly, life just began to unfold in front of me. Things looked hopeless and then I would turn around and another door would open. For me, I have no doubt it was God, but call it what you want to. For once, life was not fighting me, but guiding me. It was amazing. This felt so right. The number for the doctor went to an ophthalmologist's office. I had to ask... "How does an ophthalmologist end up treating MS?" He said, "My sister has MS. I met my wife in Brazil. She is a doctor and she knew about the doctor that developed the vitamin D protocol." We went down there and learned of their amazing success and put my sister on the protocol. Today she is fine." My heart leapt! I found the money, flew to Florida and met the two nicest more caring genuine people I've ever met, and they started me on the protocol. I remember as I was leaving, Dr. Tanimoto hugging me and saying, "You will never have to worry about this again." I was stunned. How could you make such a bold claim to a patient? With in 3 weeks I noticed a cramp in my foot which I never attributed to MS was gone! The numbers I had trouble reading, that my eye doctor said was due to being in my forties, was gone as well! I was in nursing school and I always made sure I had my glasses before walking out the door. I never needed glasses in my life until last year. One day I was cleaning my office and saw my glasses and realized I had forgotten about them. That was the moment I realized, "Oh my gosh...THIS IS WORKING!" I had told my neuro that I was going to commit to this treatment for a year, but she wanted me to come and have an MRI in June. My protocol doctor said you probably will not see much on imaging for at least a year, but I was so curious I finally could not help myself and scheduled an appointment for June 7th. Obviously, something was going on. I had to see. Every MRI result had been the same since my first exacerbation in 2007... new lesions and at least one enhancing lesion that I had to get IVSM for. The last 3 visits required IVSM and I had already made up my mind that I was not going to put that stuff in my otherwise healthy body anymore. Imagine my surprise when this time, some lesions were gone, some were smaller and none were active. Now, this is only 3 months in. There was a new one and some increase in the size of some, but over all it was an amazing MRI, and my neuro just kept saying,"That's impressive!" She also asked me for a copy of the protocol as I left her office. LOL! I was not supposed to see any change, and everything was inactive for the first time ever. I have photos of my MRIs and they are pretty impressive. I told the protocol doctor that if my MRIs came back good, and I could show visual evidence that I would tell anyone who would listen, and that is why I am here today. No one has to live with this disease! The other great news, this treatment works with all autoimmune diseases!!! I would love to talk to you if you're interested in this therapy. I understand many have lost hope, spent money on treatments that did not work, and that is why I chose to stay quiet until I could show proof. I want to give REAL hope! Wishing you all the best! Jenn If you would like to talk further, you mail email me at: jenn.vitamindprotocol@gmail.com My doctors have just launched a new website here: www.vitamindprotocol.org http://www.vitamindcouncil.org/blog/members-spotlight-vitamin-d-and-multiple-sclerosis/#

Interests

Living Well with MS Caregiver Support, Employment and education, Emotional support, Healthy living, Insurance and money matters, Healthcare, Mobility and accessibility, Parenting, Relationships and intimacy
Getting Involved Walk MS, Challenge Walk, MuckFest MS, Advocacy, Volunteering
Research Research news
Hobbies and other interestshomeschooling, gardening, health and fitness, photography, music, art...pretty much anything!

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