About Me

  • Gender Female
  • Age 43
  • Relationship Married

My Story 0 Appreciate this

5/2010 - officially diagnosed with MS. 2008, I became unusually ill. Testing positive for West Nile Virus I thought it was all figured out. I was wrong! quickly the next two years seemed consumed with unimaginable symptoms; extreme vertigo, optic nueritis repeatedly, weakness, confusion, and Pain. Being a single uninsured mom brought on complete stress and fear of something unknown. One MRI and Spinal Tap later it was clear, I had an incurable chronic disease, Multiple Sclerosis. I immediately started diet, excercise, an array of supplements, and Copaxone. Hoping dealing with all the reactions/side effects to Copaxone would be worthwhile, it was not. No hope loss, 1 yr. later it switched to Beta-Seron, which I think gives me flu like symptoms to think about. Couple of hospital visit, some steroids, more Optic Nueritis, more Lesions and not liking the option of switching meds again I waited. 5/2013 - Waiting for Techfidera to be released. Which also had side effects for me, they lessened over time mostly. No more shots! This was going to be my miracle pill. 6 months in Techfidera didn't seem to be doing much modification to the disease. 6 more months same MRI news, "Relapsing"! So here I am now...Limbo...Transfusions? I can't (at least really don't want to go back to shots)! Emotional limbo


Living Well with MS Emotional support, Healthy living, Insurance and money matters, Healthcare, Parenting, Relationships and intimacy
Hobbies and other interestsPainting, glass art, woodworking, designing, drawing (art in all aspects)

My Activity