About Me

  • Gender Female
  • Age 45
  • Relationship Single

My Story 0 Appreciate this

I was 40 when I kept thinking I had spiders dropping in front of me and I would literally jump out of my chair. After a couple of days of thinking I was losing my mind I realized what was really going on is that I had a blind spot, a black floater in my right eye. This was quickly accompanied by extreme head pain, not a headache, I'm talking real pain. Like I had repeatedly slammed my head in a door. It wasn't long before I was feeling pins and needles in my feet and hands and dropping or knocking over everything I touched. It was nearly incapacitating. All I did was go to work and come home and sleep. It didn't take long for me to visit my family Dr., who assured me it was just a migraine, despite my argument that I have never nor has any family member ever had migraines. After 3 visits to my Dr. over the course of a month and still being told it was just a migraine I decided to go see my eye Dr. By this time the pain had spread to my neck, my vision was blurry, I was beyond tired and extremely dizzy. I literally felt drunk all of the time. And no it was not fun. When I went to see my eye Dr. my head was shaking so bad that they had to have someone stand behind me and hold my head still in order for me to do the tests. It was determined that my optic nerve was swollen and I was sent to MRI 2 days later. My brain scan came back clean, no lesions. That was almost 2 years ago. After my MRI I was sent to a Neuro opthamologist. He verified I did not have eye disease and that whatever was causing this was behind my eyes, so he ordered a spinal tap. Results came back showing no infection, but a slightly elevated opening pressure and O-bands were present. This eye Dr. prepared me for an MS diagnosis. He told me that most people diagnosed have brain lesions, but that is not true in all cases. He then referred me to a neurologist. By the time I saw my neuro, I was having a lot of neck, shoulder and back pain, cramps in my calves, the pins and needles in my feet and hands were more frequent and intense, the shakiness in my head had turned into an internal buzzing that I could feel down my whole back and my hands had begun to shake so bad my writing was sloppy, I was feeling weird sensations, like something brushing up against my leg when nothing was there, or like I could imagine a worm crawling around in my back, I was so tired that I had fallen asleep at work and also in the middle of a conversation, I was walking into walls and had fallen a few times. My neurologist told me that the O-bands didn't necessarily mean that I had MS, that there were a hand full of other things it could be. She has since run too many tests to count or for me to even remember what I have been tested for and as of yet they haven't turned anything up. Since then she noticed that my hands and feet were blue and referred me to a rheumatologist. My rheumy has done her own testing which also turned up nothing. She continues to test me for schleroderma and lupus. I have also now been diagnosed with Afib and mild peripheral artery disease. I am waiting on a referral for a GI due to problems swallowing. And most recently have begun to have bladder issues. It has been nearly 2 years and I am still undiagnosed.


Living Well with MS Emotional support, Healthy living
Getting Involved Walk MS
Hobbies and other interestsCooking, baking, cake decorating, camping

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