Hi, I'm Priscilla.
I've had MS for a long time now and suppose I am very lucky to still have as much ability as l have. I am, however, becoming extremely scared of the future and the more recent affects it has had on my day to day abilities, and the toll it is taking on my body, posture, and the pain it is causing. I don't know anyone who is in a similar situation; secondary progressive MS who struggle with similar issues. I really need to connect, as I tend to fall into a rut and isolate.
I try not to be negative, and am mostly better off when I'm not alone with my difficulties and do things to take myself and thoughts away from it. However it is definitely time to reach out.
I am grateful to have a wonderful husband of 30 years and a terrific son, 26 and his lovely girlfriend, and some great friends, who take my mind off things and help me enjoy life's most wonderful, simple pleasures, but when I'm alone I need to find a way to connect with others who are truly in my shoes, and can relate on a level that I cannot expect my family and friends to understand.
I hope this connection will be an opportunity to share and hear others' experiences.