About Me

  • Gender Female
  • Age 70
  • Relationship Married

My Story 19 Appreciate this

For more years than I could count I began experiencing episodes of severe weakness and flu symptoms that I could not explain and just thought I was a hypochondriac. In 2005 I developed optic neuritis and received a firm diagnosis 6 months later. I was working in a career that I loved as a licensed professional counselor but once I was diagnosed my symptoms increased rapidly and finally retired in 2009 because the fatigue, cognitive changes and urinary problems made me unable to do the quality of therapy I wanted to do. When I was first diagnosed I had no idea what this illness was and no one to talk to so that is why I wanted to volunteer to help people who were newly diagnosed as I know how much it would have helped me. I would want people to know that all their emotions are normal and would want to help them navigate and be reassured that there is hope even on bad days. Personally I have been married for 43 years, have an adult daughter and 2 precious pound puppies who love me no matter how I walk. My biggest challenges remain my loss of independence. I am able to walk in the house but my unsteady gait requires me to use a scooter on walks or in stores. I miss being able to play tennis and ride my bike at breakneck speed and those things still make me wistful. I feel guilty that I can not do more to help my husband but try to remember that this is an illness.

Interests

Living Well with MS Emotional support, Healthy living, Insurance and money matters, Mobility and accessibility, Relationships and intimacy
Getting Involved Walk MS, Volunteering
Research Research news
Hobbies and other interests

Reading, music, using the Wii for exercise, driving my little yellow VW convertible on days I am able and being outside on a sunny day. I value friends who treat me the same as they always have and lead a telephone support group for people with secondary progressive Ms.

My Activity