About Me

  • Gender Female
  • Age 44
  • Relationship Married

My Story 3 Appreciate this

I was diagnosed with MS on my birthday, July 11, 2000. I celebrated finally being able to name the thing that had been going wrong in my body for years. It sounds strange to say, but I felt happy, a huge relief. Finally! something to research. I had a name. For over a decade, my symptoms were mild. I got to choose whether or not I told people i have MS. Most couldn't tell. I started thinking of it as a benign inconvenience, something I could work with and work around. I lost 90 lbs and became a gym rat to head off the possibility of a wheelchair. I met the love of my life. I found a fulfilling line of work. Live was good. But we can't run forever. Spactisity got me first. I started having balance and endurance trouble. I quit the gym. I started using a cane. I got a wheelchair for distance. I started avoiding crowds. 30 lbs crept back on my frame. My taste buds changed. Eating became a chore. My friendships suffered because I am unable to do the social things I used to. I couldn't know what I didn't know 16 years ago. No one can until we're in this place. Who would I be without MS? I can't answer that. MS has been my companion a very long time. I've almost forgotten what it's like to have a body that responds on command. The real question is who am I now? My husband must see something I do not because he married me only 8 months ago with my MS clear and advancing. Through his eyes, I am tentatively beginning to answer the question of identity. His constitency helps me find my footing in this ever changing world. So, who am I now? (to be continued)

Interests

Living Well with MS Caregiver Support, Emotional support, Healthy living, Insurance and money matters, Mobility and accessibility, Relationships and intimacy
Research Research news
Hobbies and other interestsReading, graphic art, painting, listening to books on tape, metaphysics, writing, movies, poker

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