About Me

  • Gender Female
  • Age 36
  • Relationship Married

My Story 1 Appreciate this

I was a newly wed and 4 months into an exciting moment in my life when my MS diagnosis hit. I had previously experienced some numbness in my right hand, and overwhelming fatigue. It was brushed off as carpal tunnel by my doctors ( I even had surgery to treat it). I was told that my fatigue was likely due to being overworked with a demanding job. I was told to rest and make sure that I wasn't packing to much into my schedule. About a year later at a work event I experienced light headedness and the right side of my face and tongue went numb. After a battery of tests and CT scans and MRI's it was definitive that MS was the culprit. Since my diagnosis I have experienced what seems like every emotion in the book. Crushing fear, anxiety, angry, sadness etc etc etc. I had an over reliance on google to fill me in on the trajectory of MS in my first few weeks. To be honest I thought the worst. Then I started to discover people who were living full and productive lives at every stage of this illness. It has changed my perspective and I am so grateful to those who have shared their story with me. I am new to all of this, but I have since come to adopt a new perspective. I will write my own story and have decided that this is a detour and certainly not a full stop. I work as a full time Human Experience Designer, and have a background in theater and playwriting. I am also hoping to start a family soon. I have grown to appreciate each moment, and lead with positivity.

Interests

Living Well with MS Employment and education, Emotional support, Healthy living, Healthcare, Parenting
Getting Involved Walk MS, Challenge Walk, Advocacy
Research Research news
Hobbies and other interestsTheatre, Music, Writing, Cooking

My Activity