I live in Brooklyn, NY and am an active member of the Southern New York Chapter of the National MS Society.
I am married, have a very supportive husband of almost thirty-nine years and two grown sons who live here in Brooklyn. We also have close relationships with members of our extended family, both those who are geographically close and far flung.
My interests are: family, social justice and environmental advocacy, cooking and food, animals, art, music, language, in addition to my professional concerns which also include aspects of social justice, advocacy, delivery of quality services, clinical proficiency, human-animal bond issues .
I've been diagnosed for more than 30 years. I think that I've integrated MS into my self-concept, but do not allow it to define me. It is not the first or only thing about me that comes into my own mind when describing myself or interacting with others. While I have symptoms and difficulty with some aspects of daily living, they are not "center stage"
(I sometimes forget to mention it, unless I need to because of mobility issues.)
My biggest challenge is still managing fatigue, which relates to all my other symptoms. There is a constant challenge not to overdo because there is a fairly large variation in what I can manage on a given day. A set of activities that is just fine one day, might be too much on another.
Physical activity and exercise, particularly in the form of water aerobics have become part of my routine. I find it both helpful and enjoyable. I have increased my exercise tolerance and endurance over time.
I help create a world free of MS by my advocacy and fundraising activities within the MS Society as well as supporting other members both informally, in my private life and practice, and by means of my work as a Mental Health Consultant with my Chapter.