About Me

  • Gender Female
  • Age N/A
  • Relationship Single

My Story 2 Appreciate this

I was diagnosed with MS in late July 2017. I had an episode of slurred speech that lasted for a month starting in mid May of 2017 that led me to go see my doctor who ordered me to get an MRI of my brain. I then, on his recommendation, headed to a neurologist who said the brain MRI showed lesions and he felt there was enough there to order a c-spine MRI then a spinal tap. The spinal tap results came back with elevated levels of protein o-bands (Oligoclonal bands) and the neurologist feels though I am just being diagnosed now, that I have actually had MS for awhile in his opinion. When he told me that I began to look back on my life thus far and it makes so much sense. Some of the symptoms that have affected me are; Slurred speech (I had an episode of slurred speech that lasted over a month in mid May 2017 as mentioned above) also I continue to get slurred speech intermittently now whenever I am having a stressful, high anxiety fueled or angry conversation, along with the slurred speech episode came during it a freezing up of the right side of face or at least it felt stiff and my smile seemed down turned but that cleared up in a few weeks, brain fog at times (find myself often searching for words or forgetting names I should know, in example), OCD/ Excoriation Disorder (scalp picking), occasional jaw pain and mouth pain including intermittent Burning Mouth Syndrome, legs feel heavy often, some tingling & numbness in left leg, forgetfulness, Tinnitus & intermittent whooshing sound in one ear, bad headaches all the time, intermittent numbness in both hands and arms which I sometimes can resolve temporarily by shaking them rigorously but it interferes with typing, weakness, writing, texting & grasping/ holding items, a tough time concentrating and learning new things and just organizing my thoughts (which I always thought was ADHD, which I have been diagnosed with and was on Adderall for, for a bit), insomnia, trouble with balance at times & at times feeling momentarily dizzy (especially when peering down a staircase for example or after exercise), lack of coordination (feeling both extremely tired even after a full nights sleep as well as very clumsy), extremely high anxiety and I have battled depression just about all my life, overactive bladder & IBS, occasional (very) short term vision issues including eye pain, right eye twitching intermittently (makes applying eyeliner difficult for that eye), trouble with voice volume (speaking loud at times and not realizing my voice has gotten louder), emotional issues often times crying too much over a situation that isn't that sad or smiling over a situation I shouldn't be smiling over and just all over pain especially in my neck & back, along with edema in my feet which comes and goes (I should mention I battle with high blood pressure as well). It seems in my case my MS symptoms are even worse when I am in a stressful or anxious environment. I also have Cervical spinal stenosis (based on a C-spine MRI I received around the same time I had the MRI of my brain and spinal tap leading to my MS diagnosis) in late July of 2017. I wanted to also note that I had seizures when I was little from when I was a baby till like age 5 and I also had chronic ear infections as a baby.

Interests

Living Well with MS Emotional support
Hobbies and other interestsMusic is a big part of how I handle MS, it's my therapy. I have a You Tube channel. Here's my You Tube channel URL https://www.youtube.com/user/AdrenochromeDream I create unique videos merging music I like along with scenes I've selected from movies I like. Feel free to rate & comment my videos and also subscribe to my channel.

My Activity