About Me

  • Gender Female
  • Age N/A
  • Relationship Single

My Story 3 Appreciate this

I was diagnosed with MS in late July 2017. I had an episode of slurred speech that lasted for a month starting in mid May of 2017 (also for 2 weeks during that episode my lower jaw went pretty stiff on the right side) those issues led me to go see my doctor who ordered me to get an MRI of my brain. I then, on his recommendation, headed to a neurologist who said the brain MRI showed lesions and he felt there was enough there to order a c-spine MRI then a spinal tap. The spinal tap results came back with elevated levels of protein o-bands (Oligoclonal bands) and the neurologist feels though I am just being diagnosed now, that I have actually had MS for awhile in his opinion. Some of the symptoms that have affected me are; Intermittent slurred & delayed speech, brain fog at times & memory issues, OCD/ Excoriation Disorder aka Neurotic excoriation (I pick my scalp to the point where it bleeds OCD/ Excoriation Disorder aka Neurotic excoriation (I pick my scalp to the point where it bleeds/forms sores & most likely the picking I do is a manifestation of an emotional problem, bad headaches all the time, intermittent numbness in both hands and arms, a tough time concentrating and learning new things and just organizing my thoughts (which I always thought was ADHD, which I have been diagnosed with and was on Adderall for, for a bit), Uhthoff's phenomenon (it is the worsening of neurologic symptoms in conditions like MS when the body gets overheated from hot weather, exercise, fever, or saunas and hot tubs), intermittent edema, occasional jaw pain and mouth pain including intermittent Burning Mouth Syndrome, forgetfulness, some tingling & numbness in left leg, Walking (Gait), spasticity, Tinnitus & intermittent whooshing sound in one ear, weakness, dysphagia (occasional trouble swallowing), (MS hug) respiratory issues/ wheezing, intermittent dry hacking cough, insomnia, trouble with balance at times & at times feeling momentarily dizzy (especially when peering down a staircase for example or after exercise), Balance, & Coordination Problems, feeling both extremely tired even after a full nights sleep as well as very clumsy, extremely high anxiety and I have battled depression just about all my life, overactive bladder & IBS, occasional (very) short term vision issues including eye pain, blurring & double vision, trouble with voice volume (speaking loud at times and not realizing my voice has gotten louder), episodes of lost taste (poor taste buds), emotional issues often times crying too much over a situation that isn't that sad or smiling over a situation I shouldn't be smiling over (PseudoBulbar Affect) and just all over pain especially in my neck & back. I also have Cervical spinal stenosis (based on that C-spine MRI I mentioned). I wanted to also note that I had seizures when I was little from when I was a baby till like age 5 and I also had chronic ear infections as a baby.--------------- Music is a big source of therapy for me, in fact my username on here is the name of a song by the band Dead Can Dance, here is a URL link for others to copy and paste, to the song "Anywhere Out of this World" on You Tube https://www.youtube.com/watch?v=C2rbWK86MgM (it's an amazing song). Another favorite song of mine is "Ambitions" by Katatonia, they are also a favorite band of mine. Copy & paste this URL link https://www.youtube.com/watch?v=kXb5Sd2xKfM to hear the song & please seek out more music from them..... I also have a You Tube channel of my own. Here's my You Tube channel URL https://www.youtube.com/user/AdrenochromeDream I create unique videos merging music I like along with scenes I've selected from movies I like.

Interests

Living Well with MS Emotional support
Hobbies and other interestsMusic is a big part of how I handle MS, it's my therapy. I have a You Tube channel. Here's my You Tube channel URL https://www.youtube.com/user/AdrenochromeDream I create unique videos merging music I like along with scenes I've selected from movies I like. Feel free to rate & comment my videos and also subscribe to my channel. I also workout on an eliptical machine I have at home, I try to use it 3-4 times a week.

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