About Me

  • Gender N/A
  • Age 51
  • Relationship Married

My Story 1 Appreciate this

I was 48, very healthy. I had never had a broken bone or any surgeries.I have never been on any daily medications. Last fall, I started getting very tired. And by very tired I mean I only ate a couple of bites at each meal because I was too tired to chew my food. I had a stressful job , so I thought that must be it. A week later I would notice when I was talking my words would get messed up and people werent able to understand me. It wasnt all the time, but several times a day. I just thought it was from being tired. Another week goes by and im in the bathroom checking my teeth for food after lunch. I tried to smile but my lips wouldnt move. I thought I must have had a stroke. I went to the Dr. and she advised me to go straight to the emergency room. Within hours, they told me they thought it was MS. Not the answer I was expecting. I didnt even know what MS stood for or really what it was. I decided not to read or learn too much about it because I didnt want to over analyze what I was feeling. There is no cure, so I thought it is what it is. My first flare-up lasted from October to March. I was exhausted, everything hurt. It felt like someone had kicked me in the back, but it never went away or got better. In March, after fighting the insurance company for two months i was finally approved for copaxone. I was so excited, I was going to feel normal again. Well, no one tells you the injections hurt like hell so I was convinced I was doing them wrong. After calling the nurse line after every injection and 30 days I said " I quit." I compare it to being punched in the face 3 times a week. I again spoke to the nurse line and they recommended I try manual injections. WOW what a difference! I still dont like them, but they are better. At that point, I had lost 30 pounds. I decided to get a personal trainer and start building my muscles back up. I had not excercised since high school so it was a little intimidating at first. My balance was horrible but I found an amazing trainer who was very patient and supportive. I look great and even better, I feel healthier than I have I ever have. My husband is a awesome partner and is always there for the victories as well as the bad days when I just want to complain. My birthday is coming up and were going to celebrate by doing the MS Muckfest. I've come a long way and im super excited to see where else I will go :)

My MS

Type of MS Newly Diagnosed with MS, Relapsing-Remitting MS (RRMS)
First experienced symptoms2014
First Diagnosed 2014
Symptoms Fatigue, Numbness, Walking (Gait), Balance, & Coordination Problems, Speech Disorders
Treatments Exercise

Interests

Living Well with MS Emotional support
Getting Involved MuckFest MS
Hobbies and other interestsI have 5 Grandkids that keep me very busy! Waterparks, bounce houses, parks, laser tag and really anything outdoors.

My Activity