My health is complicated.
I was infected with Lyme Disease 21 years ago.
I was tested for MS due to symptoms almost 20 years ago, before the LD was diagnosed. It took 4 years to get a diagnosis, as you can imagine the Lyme did some serious, some irreversible damage.
I was told at that time that I had pre-lesions, inactive. I still don't know what that means.
20 years ago, I was 35 years old.
I have dealt with a smorgasbord of symptoms since, but have also had double knee replacement surgery due to Lyme arthritis and dealt with stage 4 skin cancer...so my focus was diverted at times.
My symptoms would be poo-pooed away.
Hot flashes/ heat intolerance? You're premenopausal
Headaches? Reduce your stress
Fatigue? Get some sleep
Muscle aches/pains? Get some exercise
Stiff muscles/stiff neck? Buy a new bed (really!!)
Depression? Here, take this pill
Ankle pain? Get supportive shoes, walk more
Blurred vision? Get new glasses
Trouble swallowing? Eat more slowly
Seriously! I have been called a malingerer. Been referred to a psychiatrist.
Been told "it's all in your head".
My primary care physician now is a lovely man! He actually listens to me.
He is sending me for testing/imaging on June 9th.
I guess my question is this, how difficult was it for you to get a definitive diagnosis?
How long did it take?
And my most troubling symptoms at this time is when my vision is obliterated and I have stabbing eye pain (not at the same time).
Thanks....