About Me

  • Gender N/A
  • Age 60
  • Relationship Domestic Partners / Common Law

My Story 2 Appreciate this

My health is complicated. I was infected with Lyme Disease 21 years ago. I was tested for MS due to symptoms almost 20 years ago, before the LD was diagnosed. It took 4 years to get a diagnosis, as you can imagine the Lyme did some serious, some irreversible damage. I was told at that time that I had pre-lesions, inactive. I still don't know what that means. 20 years ago, I was 35 years old. I have dealt with a smorgasbord of symptoms since, but have also had double knee replacement surgery due to Lyme arthritis and dealt with stage 4 skin cancer...so my focus was diverted at times. My symptoms would be poo-pooed away. Hot flashes/ heat intolerance? You're premenopausal Headaches? Reduce your stress Fatigue? Get some sleep Muscle aches/pains? Get some exercise Stiff muscles/stiff neck? Buy a new bed (really!!) Depression? Here, take this pill Ankle pain? Get supportive shoes, walk more Blurred vision? Get new glasses Trouble swallowing? Eat more slowly Seriously! I have been called a malingerer. Been referred to a psychiatrist. Been told "it's all in your head". My primary care physician now is a lovely man! He actually listens to me. He is sending me for testing/imaging on June 9th. I guess my question is this, how difficult was it for you to get a definitive diagnosis? How long did it take? And my most troubling symptoms at this time is when my vision is obliterated and I have stabbing eye pain (not at the same time). Thanks....


Living Well with MS Emotional support, Healthcare, Relationships and intimacy
Hobbies and other interestsmaking Dichroic glass jewelry

My Activity