About Me

  • Gender Female
  • Age 32
  • Relationship Domestic Partners / Common Law

My Story 1 Appreciate this

I was diagnosed with MS in February 2011 while I was in graduate school for graphic design at Savannah College of Art and Design. Graduate school was stressful enough and my boyfriend and I had just gotten back from a tense holiday break where his family had fought a lot. I was diagnosed quickly, so quickly that I don't think I really got a chance to process what was going on very much at the time. I had a tingling sensation on my skin in the midsection and got diagnosed with a pinched nerve. The sensation quickly spread to my whole body (hands, feet, etc.) and because this happened on the weekend I got myself to the ER. That doctor suggested I see a neurologist because the spreading sensation had a chance of being MS. Our school doctor's office was able to get me an appointment with a neurologist right away, which I am very grateful for. He did tell me he "really didn't think it was MS" but we did the MRI anyways. Well, he was wrong! So much of the "you look fine" has been part of my experience from the very beginning. When I moved back home to MD I got a copy of my medical records and I could see that the doctor noted that my symptoms were likely caused by anxiety, so I've kind of felt unvalidated in a way from the start. Finishing school was pretty tough with this big rain cloud over me but I did it. I still wonder if I could have done better with my school projects and had a better portfolio if I didn't have MS. I am just now, 4 years later, processing at lot of this hurt, regret and emotions from my diagnosis period. I haven't had an MS attack since my initial diagnosis but have a hard time telling if symptoms I experience are from MS or from something else. I also have had thyroid problems and recently had my thyroid removed to diagnosis nodules that were growing on my thyroid (luckily it wasn't cancer but now, no more thyroid!) I feel like I get pretty tired and down easily and have a hard time picking myself back up. I worry about when things are going to take a turn for the worse and how I will deal with it.

My MS

Type of MS Relapsing-Remitting MS (RRMS)
First experienced symptoms2011
First Diagnosed 2011
Symptoms Fatigue, Numbness, Bladder Dysfunction, Dizziness and Vertigo, Emotional Changes
Treatments Acupuncture, Diet, Exercise, Tysabri, Vitamin D, Yoga

Interests

Living Well with MS Emotional support, Healthy living, Insurance and money matters, Relationships and intimacy
Getting Involved Walk MS, Do It Yourself Fundraising
Research Research news
Hobbies and other intereststhe arts, movies, hand lettering, my community

My Activity