About Me

  • Gender N/A
  • Age 67
  • Relationship N/A

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I was diagnosed about two years ago after a fall in the garden which resulted in a broken ankle ( I also have Osteoporosis) . After my initial appointment with my Neurologist I realised I had many of the MS symptoms for years. I was working full time when I was diagnosed but experiencing a lot of pain from my waist down. Eventually it became so bad I had to make a choice between my health and my job... my health won. I was first put on Tecfedera which reduced me to a couch, I felt very nauseous and totally unwell. I was then put on Gilenya, no obvious side effects, but Neurologist has told me I am positive for "JOP" (not sure if thats right terminology) which means I am more at risk for progressive multifocal leukoencephalopathy . I am now in a battle with myself as to whether I want to continue with the Gilenua or just be drug free.


Hobbies and other interestsPhotography, cycling, walking, animals.

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