About Me

  • Gender Female
  • Age 51
  • Relationship Married

My Story 0 Appreciate this

As a child I watched my Grandfather, a tough Italian immigrant and 10th mountain division solider suffer without relief. He begged us to die. The disease terrified me. I had my first symptoms 12 years ago with Optic Neuritis, no one took it seriously. It resolved in 6 weeks and no one but my eye doctor jumped up and down wanting further testing for MS. So I continued to ignore the numbness, weakness, bladder spasms and fatigue for years. I had a pcp who did not feel an MRI or a neurology consult was necessary.I am an RN and worked with many people who knew I had MS but was not being treated. My flares only came every 2-3 yrs and resolved. I lived in NY and while I was very active, it was not so warm that a cool off in the pool would not help, I also worked nights so I was not awake during the warmest days. 2 months ago I exhausted myself on a warm day on a 16 mile hike up and down the tallest mountain in NM. I lost control of my bladder and my R leg became spastic with 4.5 miles left to go. All my husband could do was cool me off in a running spring and pray I did not fall off the 1 1/2 foot wide steep trail down. I was able to see a neurologist here who finally confirmed my diagnosis and began treated the pain and spasms, unfortunately my vision loss is not coming back. My biggest challenge is getting up everyday a bit earlier than usual to wait for my sea legs to return. I am blessed with a husband who stands by my side and helps me walk when I no longer can at the end of the day. My physical therapist helps me understand the process better, teaches me how to breathe properly and accept the physical limitations I have which honestly, I have a hard time adjusting to. I am patiently waiting, for the day I can return to Yoga class and hike that darn mountain again, this time taking the Tram down. I would tell someone new to MS to fight, stay as healthy as you can for as long as you can and never give up. I do not intend to ever give up. I pray everyday for a cure for future generations and hope for one in mine. Getting the word out and helping with fundraising towards a cure is the only way to help cure this disease.

Interests

Living Well with MS Caregiver Support, Emotional support, Healthcare
Getting Involved Walk MS, Challenge Walk, MuckFest MS, Advocacy, Volunteering
Research Research news
Hobbies and other interestsYoga, Hiking, jogging, taking our dogs on long walks

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