In 1960, age 12, I was paralyzed down my left side. Since nothing could be done, I was not told what was wrong with me. I went to college for a few years till MS prevented me from playing the piano on a level I wanted. Married, had 3 kids, divorced, lived life as normal as possible.
Enter knee surgery because I was making "noise" when I walked. Always made that noise. Never thought anything about it. Told doctors when I awake from surgery I wanted my face to feel "normal" again. Later found out that had a name also. Trigeminal Neuralgia. But at least it got me to my first neurologist.
Since that time MS has taken over my life. Wheelchair/bed bound. Forced medical retirement because cognitive issues took over. But life is good even tho it is not as I would have wished.