About Me

  • Gender Female
  • Age 49
  • Relationship Single

My Story 0 Appreciate this

While I was going to College in the 1990s I started getting migraines. They were so bad I had to miss alot of my classes. I stayed home and slept most of the day. Finally I went to a neurologist he suggested I get an MRI. When he shared the results with me I started crying. There was big white things on my brain. I couldn't believe it. I had to drop out of college. All my hopes and dreams were shattered. My neurologist sent me to the Cleveland Clinic to get a second opinion. They put the halo on me. I screamed while they were screwing the screws in my head. THIS is when I was diagnosed with MS. For 20 years I had some flare ups. Then I was put on steroids. 10 years ago I had the worse flare up. Which put me in the wheelchair. I have Secondary Progressive MS now. I experience alot of spasticity, I can no longer brush my teeth, I have a hard time feeding myself. I also have a hard time swallowing. Physical therapy and occupational therapy help. I've had the Ocrevus infusion twice. I can see the changes. I'm looking forward to getting my next infusion in October.

Interests

Living Well with MS Emotional support, Mobility and accessibility
Research Research news
Hobbies and other interestsLove animals especially my two cats

My Activity