About Me

  • Gender Female
  • Age 59
  • Relationship Married

My Story 0 Appreciate this

I grew up in a small town in upstate NY. It seems like MS was always part of my life because my Aunt Ruth was bed bound with SPMS as long as I can remember. I became a Candy Striper as a young teen so I could help her in her Skilled Nursing Center where she lived. The time spent with my Aunt led me directly to Nursing school and my RN career. In 1987 ( 6 weeks after delivering our child ), I developed a sudden onset of severe fatigue one evening while a co-worker and her newborn were visiting. I had to excuse myself and go to bed. The following morning, I had severe dysarthria ( It sounded like I'd had a stroke when I tried to speak). I had a CT that showed nothing and the symptoms resolved within a week or so. In June of 2000 I began having fatigue again along with equilibrium disturbances, numbness in my feet and several other vague symptoms. After a Spinal Tap and MRI the diagnosis of MS was made. I was FREAKED - the only vision I had of MS was NOT a pretty one! I had several episodes of visual disturbance with vertigo and uncontrolled vomiting that were treated at the ER with IV Dramamine. I live in Florida and was totally intolerant to heat at the time. Fortunately, My MS calmed down and I was able return to work after about a year. I remained stable with Avonex for several years . In 1998 I began having flares and my Neurologist gave me the " 3 Strikes You're Out Cookie " talk, I stopped working at that time and began Rebif. I REALLY missed my interaction with co-workers and patients. In 2011 when I lived barefooted in cut off shorts and T-shirts and life seemed to have no meaning I decided to "Get a Life" and became an Avon Lady. So, on good days you'll find me playing Avon and on rough days I plan my attack. I actually came here today because I am about ready to start my first round of Acthar and I'd like to hear some feedback from others who have used it.

Interests

Living Well with MS Emotional support, Healthy living
Research Research news

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