About Me

  • Gender Female
  • Age 46
  • Relationship Domestic Partners / Common Law

My Story 4 Appreciate this

I am mom of a beautiful 14 year old daughter. Her dad, her and myself live together with a few animals. We have 2 dogs, a bunny, a guinea pig and an african fat tailed gecko. My first symptoms started in 1990. But only got migraines and dizziness. Then I would feel fine and then another round of new symptoms a little worse and so the cycle began. In those days, they only looked for MS on the brain and mine is mostly in my spinal cord. So even though I had the MRI's of the brain, it went misdiagnosed for years. But I am not alone in that. Many people go through that still. After many years of tests and being on 23 medications, I decided in 2010 to change all my doctors and start fresh. Within 6 months, I had a diagnosis that was confirmed by a couple of doctors. I started treatment and dropped to 13 medications and eventually to 8. It was wonderful. As new symptoms occurred I would feel overwhelmed, but then remitting would kick in and all was well again. Now as sit here and look back at my journey, I have a much clearer head about things. I find that my biggest challenge in life is overcoming my own self doubt. Yes MS challenges me. But I have decided that each thing can be overcome - whether it is by adaptive equipment or help from others. 2 years ago I was walking on my own. Now I am in a motorized wheelchair. This was such a mental struggle, but I do soo much more now in my chair than I have in many years. My body doesn't get as fatigued and many things are accessible. My hopes and dreams are the same as they always have been. House, family, vacations. I have all of those things. And I do want to go on a cruise someday to Alaska and I want to see Niagara Falls on the Canadian side. I just will achieve my dreams a little differently. If you are new to MS, please do not get discouraged. It is scary, and there is a lot of information coming at you in a very short time frame. Trust in your doctors. And find a support system that works for you - whether it's a call line, an online group, an actual live meeting, friends, family, counselors, etc. Find your peace. A world free of MS would be absolutely amazing. But we have to be that driving force to get there. So for me, I volunteer at local National MS Society events and I fund-raise to the NMSS. I also am a Peer Support member for the MS Friends call line and I am the administrator of an online support group through MS Connections. I now look at every little thing I do as an accomplishment. If I get from my bed to the living room, then I am proud of myself. The one thing I always say and it is my own personal quote is: "Every day I get up, I beat MS. Every single thing I do, big or small, is an accomplishment, and I beat MS." I will leave you with this thought... If you are reading my story, that means you have reached out to gain some knowledge and some support. To me... that is a HUGE ACCOMPLISHMENT. YOU SHOULD BE PROUD OF YOURSELF. I KNOW I AM PROUD OF YOU!!!!!

Interests

Living Well with MS Healthy living, Mobility and accessibility
Getting Involved Walk MS, Challenge Walk, MuckFest MS, Do It Yourself Fundraising, Advocacy, Volunteering
Hobbies and other interestspainting glasses, coloring, gardening, shopping, being outdoors

My Activity