About Me

  • Gender Male
  • Age 53
  • Relationship Single

My Story 0 Appreciate this

Hi , My name is Scot , I first started to show signs in 1995 . I remember being at a cook out and I tried to stand and my legs began shaking so bad that I was not able to stand , it passed after about 20mins or so . The next day I couldn't get out of bed and I was in major pain in my hips and legs, called an ambulance and was admitted to the hospital were I was put through a battery of test and they found nothing so of course I was told I was having a conversion reaction. I'm alot of us have been told that but at the time I felt totally alone and angry and I just could not figure out why I was doing this to myself, (they had me thinking that I was crazy )...... but about a yr later a Neurologist finally found some lesions . I remember actually feeling relieved that I really had something , and it had a name , It was MS !!!! Then the fear set in , I had no clue what was going to happen to me ... God I was so scared !!! I was diagnosed with relapsing remitting so over the years I was treated with many different treatments to include high does steroids ( and we know what that does to you ) ,the side effects were terrible !!! But it helped , and then came the Avonex , Rebiff , and so on ..... But I was rediagnosed with ppms about 2 months ago , so I'm back to the fear and the just not knowing . My legs have gotten so weak that I now use a wheelchair most of the time and my pain levels are often about a 8 or 9 on scale of 1-10 . But so be it I guess ??? Or maybe not , maybe there is still some fight left in me ? No actually I know there is still alot of fight left in me , but I just don't want to do it alone , actually let me correct that and say that I can't do it alone !!! Things just go better when there is someone else to talk to and someone else who has some kind of knowledge of what I'm going through . Hell like they say " IT TAKES A VILLAGE " and there has been no better village for me than the MS community !!! We really are a team of people who care for and support each other !!! So Please feel free to contact me and we will do this together , and if we can't then we will find the right people who can help us get through whatever it may be on any particular day , And that I will PROMISE !!! Because in this village there is always somebody there who can is willing to help us !!!

Interests

Living Well with MS Caregiver Support, Emotional support, Mobility and accessibility
Getting Involved Advocacy
Research Research news
Hobbies and other interestslove antiques and flea markets , yard sales and yard work when able ......

My Activity