About Me

  • Gender Female
  • Age 40
  • Relationship Divorced

My Story 0 Appreciate this

I was diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS) in February of 2012 after years of trying to find answers. I went through years of being told there was nothing wrong with me, and basically that I was crazy. Fortunately, with the help of my partner at the time, I kept moving forward, documenting my day to day symptoms and life. Finally I found the MS center of Atlanta, and within a month of seeing them and getting the appropriate testing (MRI with contrast, Spinal Tap, etc) I finally had an answer to all the issues I had been having, Multiple Sclerosis! I started on the clinical trials for Ocreluzamab, now called Ocrevus. Initial I was blinded, but was told I was either on Rebif or Ocreluzamab. After the first year my relapses deminished, and until 2/2017 I had been relapse free since 5/2014. It was reveled after the first phase that I had been on Ocreluzamab the entire time. This last relapse has been a big one. I did the steriods and now at almost a month out, my progress has stopped and I am finding my normal. Now I have a wheelchair to use for distances because my left leg isn't quite working and I get very fatigued even with my cane. I have become a fall/fracture risk. I can walk for short distances and can stand for about 15/20 minutes before my leg just won't do it anymore and I have to sit. Starting physical therapy this week as well.

Interests

Living Well with MS Employment and education, Emotional support, Mobility and accessibility, Relationships and intimacy
Getting Involved Advocacy
Research Research news
Hobbies and other interestsGardening, drawing, painting, sewing and quilting

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