About Me

  • Gender Female
  • Age 51
  • Relationship Married

My Story 0 Appreciate this

I have Primary Progressive MS and I must say it sucks! Sometimes it is overwhelming and I get depressed and hopeless. I feel alone and that no body understands how I feel. I find myself asking why me? Before I was diagnosed I kept falling thinking that my shoes were catching the carpet and began to think it was in my head, but when I fell in my bosses office I knew something was wrong. Of course I went through a battery of tests before the final diagnosis which took a couple months. I am trying to keep high spirits by getting up and going to work so I have to walk and function. My theory is use it or loose it. I watch people who can walk and think how lucky they are. I will say most people are very kind by holding doors. I am using a walker to get around but too much walking makes me tired. My life has changed dramatically and fear for what may be ahead. I would say the biggest hurdle is my walking and the fatigue. I feel like I am sleeping my life away. I am still working, trying to hang in there as long as possible. I need someone to talk to who understands how I feel so I joined this website. I am looking forward to chatting with others in my position.


Living Well with MS Emotional support, Insurance and money matters, Mobility and accessibility
Hobbies and other interestsI enjoy swimming and watching TV with my little doggie. Would love to do more but I am so limited.

My Activity