About Me

  • Gender N/A
  • Age 44
  • Relationship Married

My Story 0 Appreciate this

So here I am, 40 in a few months and for the past 2 years I've had long periods of being ill. It started in the beginning of 2014 with extreme fatigue, pins and needles and pain in my face and numbness in my cheek, right leg end right hand. I was told by my GP that I had trigeminal neuralgia and was put on amitriptyline. I had blood tests and the fatigue was put down to b12 being low and vitamin d hardly existent. After some treatment I felt better. Few months down the line I went down hill again, extreme fatigue, face was numb and tingling, pins and needles, dizziness, low bp, weakness in muscles. The GP took a full medical history and zoned in on an adrenal problem in the family history. So I had two early cortisol bloods and they decided that I needed to see an endocrinologist. 4 months later in December 2014 I saw an endocrinologist and had tests in January and upon return in March 2015 I was told I had an adrenal insufficiency but I only needed steroids as and when I was ill or in an accident or physical stress etc. I had a period of two months from 2014 to 2015 were I felt better but within a few months I was ill again. The endocrinologist ruled out any hormonal problem. So back to the GP as my symptoms have got worse with pins and needles/numbness in my face, hands, right thigh, feet etc and the fatigue not getting any better. I also find myself over thinking things like my mind can't take everything in. I've noticed when writing with a pen I miss words out as my brain seems to be processing what I'm writing slower then I'm thinking it.....if that makes any sense!! Even simple maths after a full day at work can test my thinking! So I've been referred to see a consultant neurologist and hopefully we will have some news!! I'm married with 3 girls aged 9, 11 and 15. They have also noticed a decline in my energy levels and also my mood swings. I seem to get frustrated and I can get cross a lot for no reason! I don't recognise myself sometimes from being 38 to now!! I work 30 hours a week as a medical secretary for Plastics. I enjoy my job but by Thursday I'm shattered, Friday is a drag and I'm counting the hours till home time. Not knowing what's wrong has to be the worse thing ever and I'm not wanting to have MS but my gut feeling is that it could be possible and my symptoms point to this. I'm not someone that gives up easily and I'm ready for the fight ahead and any drugs I need to help me!

Interests

Living Well with MS Healthy living
Hobbies and other interestsSwimming, reading, watching films and doing family things with the kids

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